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About TA - Our Mission, Vision, Values and Goals
Tourettes Action is the UK’s only national charity dedicated to supporting individuals with Tourette syndrome and their families. Our staff, volunteers and supporters are engaged and energised in driving forward our mission. Everything we do is grounded in our community’s needs and informed by both the voices of our community and research-based evidence.
Our Vision
We want a world where people with Tourette syndrome are: accepted, supported and embraced. This is a world which enables people with the condition to reach their full potential.
Our Mission
- We will support and empower people living with Tourette syndrome, and their loved ones, through comprehensive advice and support.
- We will campaign to improve services, raise awareness and understanding of Tourette syndrome, and work to eliminate the stigma surrounding it.
- We will assist and promote essential research into Tourette syndrome.
Our Values
These values underpin everything that we do:
Empathy: We approach every person and situation with understanding, kindness, and genuine concern. We listen to our community, to support people with Tourette syndrome and their families in their hour of need.
Eradicate Stigma: We push to break the stigma of Tourette syndrome by educating the public and professionals, to enhance understanding and promote social acceptance of people living with the condition.
Empowering: We empower people with Tourette syndrome to be themselves and reach their full potential.
Equity: We create an environment where people from all backgrounds feel welcome, respected, and valued - creating a level playing field for all our members.
Ethical: We give impartial advice grounded in scientific and research-based evidence and operate with honesty, transparency, and accountability in all our actions.
Our Goals
Our goals are grounded in our community’s needs and informed by their voices.
1. To enable people with Tourette syndrome to thrive: Provide accessible support, advice and training, to individuals and their families, and professionals, helping people living with the condition to flourish at home, in education and in employment.
How - Develop and distribute comprehensive resource guides and factsheets that are accessible online. Provide training and advocacy within education and employment. Provide online seminars to keep our community updated on the latest advice from experts.
2. To raise awareness of Tourette syndrome and reduce the stigma associated with it: Increase public awareness and understanding about the reality of Tourette syndrome, and what it means to live with it.
How – Delivering annual, nationwide awareness campaigns to truly reflect the voices of our community. Sharing accurate information that is not only based on lived experience but also on recent scientific and research-based evidence about Tourette syndrome. Conducting educational training and workshops for both education, workplace and healthcare professionals.
3. To reduce health inequalities for people living with Tourette syndrome: Campaign so that everyone with Tourette syndrome can have access to an appropriate NHS healthcare provision, regardless of their location, ethical or cultural background or social status.
How – Bringing our community together to push for improvements and supporting them in lobbying parliament and health campaigning. Belonging to relevant coalitions and steering groups which work together to push for improvements in health provisions, ensuring the voices of our community are heard.
4. To ensure that no-one with Tourette syndrome feels alone: Build a network of support for people with Tourette syndrome and their families, ensuring that no one living with, or affected by the condition, feels alone.
How – Providing support to individuals affected by Tourette syndrome by creating opportunities for them to meet and connect with others facing similar challenges through both in-person and online events. This includes facilitating both face to face and online support groups, hosting various online and in-person events, organising several annual residential gatherings for families, teenagers, and adults with the condition, and offering access to a help desk for personalised, one-on-one assistance.
5. To support research into Tourette syndrome: Informed by the views of our community, we will assist and promote research that examines the causes, the treatments, and the impact of Tourette syndrome, with a view to improving the lives of people with the condition.
How – Facilitating researchers in their studies and provide insights into the lived experience of Tourette syndrome. Developing community-defined priorities for research. Where possible, funding research into Tourette syndrome. Disseminating findings of research in accessible formats to the community and stakeholders.
6. Prudent financial and risk management: We seek to preserve and enhance the strength of the charity, safeguard our people, our community and the enduring reputation of the charity.
How – Having strict budget and financial management. Promoting, managing and monitoring fundraising. Ensuring that all areas of risk, including but not limited to safeguarding, and compliance and technology, are effectively managed through our risk register and through appropriate maintenance and monitoring of policies and procedures.
Find out more about Tourettes Action
Watch our video to hear about our work from the people we support.
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