Terms and Conditions of Website Use and Privacy Policy

Welcome to the Tourettes Action website. If you continue to browse and use this website, you are agreeing to comply with and be bound by the Terms and Conditions of Website Use and Privacy Policy outlined below.

Last Updated: 04/09/2024

 

Tourettes Action and you

The term ‘Tourettes Action’ or ‘us’ or ‘we’ refers to the owner of this website, Tourette Syndrome (UK) Association, whose registered office is at The Meads Business Centre, 19 Kingsmead, Farnborough, Hampshire, GU14 7SR.

• Tourettes Action is a trading name of the Tourette Syndrome (UK) Association. We are a company registered in England and Wales, under company registration number 2613993.
• The term ‘you’ refers to the user or viewer of our website.

General terms and conditions

• The content of this website is for your general information and use only. It is subject to change without notice.
• We do not guarantee that our website, or any content on it, will always be available or be uninterrupted. We may suspend or withdraw or restrict the availability of all or any part of our website for business and operational reasons.
• Neither we nor any third parties provide any representation, warranty or guarantee, whether express or implied, as to the accuracy, timeliness, performance, completeness or suitability of the information and materials found or offered on this website for any particular purpose.
• You acknowledge that such information and materials may contain inaccuracies or errors and we expressly exclude liability for any such inaccuracies or errors to the fullest extent permitted by law.
• Your use of any information or materials on this website is entirely at your own risk, for which we shall not be liable. It shall be your own responsibility to ensure that any products, services or information available through this website meet your specific requirements.
• Reproduction is prohibited other than in accordance with the copyright notice, which forms part of these Terms and Conditions of Website Use.
• Unauthorised use of this website may give rise to a claim for damages and/or be a criminal offence.
• We do not guarantee that our website will be secure or free from bugs or viruses. You are responsible for configuring your information technology, computer programmes and platform to access our website. You should use your own virus protection software.
• You must not misuse our website by knowingly introducing viruses, trojans, worms, logic bombs or other material that is malicious or technologically harmful. You must not attempt to gain unauthorised access to our website, the server on which our website is stored or any server, computer or database connected to our website.
• In the event of a breach of the Terms and Conditions of Website Use and/or Privacy Policy, your right to use our website will cease immediately.
• Tourettes Action may change these Terms and Conditions of Website Use and its Privacy Policy from time to time by updating this page. You should check this page from time to time to ensure that you are happy with any changes. This policy is effective from March 2018 and was last reviewed on 20 May 2024.
• These Terms and Conditions of Website Use, Privacy Policy and your use of this website and any dispute arising out of such use of this website is governed by English law and subject to the exclusive jurisdiction of the courts of England and Wales.

Copyright notice

• This website contains material which is owned by or licensed to us. This material includes, but is not limited to, the content, design, layout, look, appearance and graphics.
• This website and its content are the copyright of Tourette Syndrome (UK) Association, trading as Tourettes Action - © Tourettes Action 2022. All rights reserved.
• Any redistribution or reproduction of part or all of the contents in any form is prohibited other than the following:
• you may print or download to a local hard disk extracts for your personal and non-commercial use only; and
• you may copy the content to individual third parties for their personal use, but only if you acknowledge the website as the source of the material.
• You may not modify any materials you have printed off or downloaded in any way.
• You may not, except with our express written permission, distribute or commercially exploit the content. Nor may you transmit it or store it in any other website or other form of electronic retrieval system.
• You may not create a link to this website from another website or document without Tourettes Action’s prior written consent.
• All trademarks reproduced in this website, which are not the property of, or licensed to the Tourettes Action, are acknowledged on the website.

Disclaimer

• The information contained in this website is for general information purposes only.
• The information contained in this website is provided by Tourettes Action and while we endeavour to keep the information up to date and correct, we make no representations, warranties or guarantees of any kind, express or implied, about the completeness, accuracy, reliability, suitability or availability with respect to the website or the information, products, services, or related graphics contained on the website for any purpose. Any reliance you place on such information is therefore strictly at your own risk. Tourettes Action exclude all implied conditions, warranties, representations or other terms that may apply to our website or any content on it.
• Tourettes Action will not be liable to you for any loss or damage, whether in contract, tort (including negligence), breach of statutory duty, or otherwise, even if foreseeable, arising under or in connection with: (i) use of, or inability to use, our website; or (ii) use of or reliance on any content displayed on our website. In particular, we will not be liable for loss of profits, sales, business, or revenue; business interruption; loss of business opportunity, goodwill or reputation; or any indirect or consequential loss or damage.
• Every effort is made to keep the website up and running smoothly. However, Tourettes Action takes no responsibility for, and will not be liable for, the website being temporarily unavailable due to technical and other issues beyond our control.

Links to other websites

• Our website may contain links to other websites of interest. We have no control over the nature, content and availability of those websites.
• We cannot therefore be responsible for the protection and privacy of any information which you provide whilst visiting such websites and such websites are not governed by this Privacy Policy. You should exercise caution and look at the privacy policies applicable to the website in question.
• Please note that the inclusion of any links does not necessarily imply a recommendation or endorse the views expressed within them.

Downloading Tourettes Action resources

• To access certain Tourettes Action resources, registration of your details is necessary. This enables us to gather data for analysis and to provide you with pertinent updates related to resources you have accessed, where permitted by law.
• By downloading resources from this website, you acknowledge that we will store this information in our secure database. Our handling of this information aligns with the specifications outlined in our Privacy Policy (reference below).
• If at any point you wish to be removed from our mailing list, or you would like exercise other available rights you have in relation to your data (also set out in the Privacy Policy below), please contact us at help@tourettes-action.org.

 

Privacy Policy

Welcome to Tourettes Action’s privacy policy.

We may amend this Privacy Policy from time to time to keep it up to date with legal requirements and the way we operate our business. Please regularly check these pages for the latest version of this.

• This Privacy Policy gives you information about how Tourettes Action collects and uses your personal data through your use of this website, including any data you may provide when you e.g. register with us, sign up to our newsletter or purchase a product.
• Tourettes Action is committed to ensuring that your privacy is protected. Should we ask you to provide certain information by which you can be identified when using this website, then you can be assured that it will only be used in accordance with this Privacy Policy.
• This website may include links to third-party websites, plug-ins and applications. Clicking on those links or enabling those connections may allow third parties to collect or share data about you. We do not control these third-party websites and are not responsible for their privacy policies. When you leave our website, we encourage you to read the privacy policy of every website you visit.
• This Privacy Policy should be read alongside the Tourettes Action Data Protection Policy. 

About us (as data controller) 

• Tourettes Action is registered under the Data Protection Act, Registration No. Z7816832,
  and with Companies House (registered company number 2613993, The Meads Business Centre, 19 Kingsmead, Farnborough, Hampshire, GU14 7SR. 

Whose personal data do we collect? 

• We process personal data about the following persons:
  • visitors to our website (https://www.tourettes-action.org.uk/) and
  • job applicants.

• We collect personal data when you contact us via email, phone or written correspondence, fill in the contact form on our website or subscribe to our newsletter.
• Our website automatically collects information about all visitors – see section on How we use Cookies for more information. 

What information we collect

• Personal data means any information about an individual from which that person can be identified.
• We may collect, use, store and transfer different kinds of personal data about you. These include:
  • name, age, date of birth, gender, ethnicity and job title;
  • contact information including email address, telephone number and billing and postal addresses;
  • demographic information such as postcode, preferences and interests
  • medical information but limited to information about diagnosis related to Tourette Syndrome;
  • your username and password for registration on our website;
  • information relating to purchases or orders made by you; and
  • your preferences in receiving marketing from us and our third parties and your communication preferences.
• We do not store credit card details, nor do we share customer details with any third parties.

How we gather Information

• If you are a service user, the information you share is stored and used to provide you with the correct level of service.
• If you request to participate in any of our training sessions or national events the information you share is used facilitate attendance and, inform you of future events.
• If you make a donation via our website your information will be used to process and administer your donation.
• If you apply for an advertised vacancy, we will process the personal information you provide to us as part of your application and any interview selection process.
• If you offer to volunteer, we will process the information captured in the Volunteer Application to determine which area of our service your skills will be most suited.
• If you register for an account on our website or subscribe to our newsletter or marketing communications, we will process your personal information to provide you with these services.
• If you contact us, we will use your personal information to respond to your query and/or comments.

What do we use personal data for?

In the table below we have provided a description of the different purposes for which we process personal data. For each purpose, we have indicated the legal basis we rely on under data protection law: 

Purpose	Personal Data	Legal Basis
To collect information using cookies and similar technologies	IP address; device and browser generated information; information about site activity	Consent (where required in relation to non-essential cookies) Tourettes Action has a legitimate interest in providing a functioning and secure website (where permitted in relation to essential cookies)
To determine your eligibility for the role you applied for and to provide you with feedback on your application.	Name; email address; phone; CV	Tourettes Action has a legitimate interest in fully assessing applicants to ensure that only suitable and appropriate applicants are selected, to compare applicants and make a fair decision on the most appropriate applicant for the role.
To send our newsletter with the latest updates.	Name; email address; marketing preferences	Consent
Providing support and information to individuals with Tourette's syndrome who seek help (and disclose the fact they have Tourette's).	Medical information but limited to information about symptoms, diagnoses and experiences related to Tourette's syndrome.	Tourettes Action has a legitimate interest in being aware of where indivduals have Tourettes Syndrome where this is provided by individuals when they reach out for support. This may involve process of special categories of personal data related to health, and as such, the applicable legal basis is UK GDPR Article 9(2)(g) – where processing is necessary for reasons of substantial public interest, specifically for supporting individuals with a particular disability or medical condition (Schedule 1, Part 2, section 16, DPA 2018).
To manage events, e.g. outreach / promotion of event, event registration, production of event materials, and post-event follow up activities such as courtesy messages and documenting attendees.	Name; email; address	Tourettes Action has a legitimate interest to ensure that individuals who wish to participate in our events are properly accoutned for, and so Tourettes Action can understand who attends them for operational and security purposes.
To keep an internal record of the resources downloaded from our website per user.	Name; email; address.	Where permitted by law, Tourettes Action has a legitimate interest to provide free resources to individauls, and also to gather support for campaigns from people who have expressed a similar interest in the past.
To process and keep a record of the donations made by you.	Name, address, debit and credit card information.	Necessary to perform a contract with the data subject.
To determine your elegibility when you applied to volunteer with us, including (where applicable) undertaking a DBS check. Once a volunteer has signed up to the DBS update service, TA will do a check on a bi-motnly basis.	Name; email, phone; CV information and background checks.	Necessary to performing a contract with the data subject, i.e. as part of a volunteering agreement. Tourettes Action has a legitimate interest in undertaking a DBS check on volunteers to ensure that people acting on its behalf who come into contact with vulnerable children or adults (i.e. who may be service users) in person, online or by phone do not pose a safeguarding risk. Tourettes Action may process criminal offence data via the DBS check and as such, the applicable legal basis is UK GDPR Article 9(2)(g) – where processing is necessary for reasons of substantial public interest, specifically because processing is necessary for Tourettes Action to pursue this in the course of its legitiamte activities as a not-for-profit body, as described above, with appropriate safegaurds (Schedule 1, Part 3, section 31, DPA 2018).
To respond to general enquiries	Name; email, phone; address	Tourettes Action has a legitimate interest in responding to you when you send an enquiry through our website contact form or when you ring our general enquiries phone number.
To create an account on our website when you choose to register with us	Name; email, phone; address	Necessary to perform a contract with the data subject.
Where you choose subscribe to our newsletter, marketing communications or promotional materials.	Name; email	Consent

 

Sharing personal data with third parties

• Sometimes we use business partners to help us provide our services. We also use technology service providers to host our platform and to store your personal data. These providers are subject to contracts which require them to comply with our instructions and to only process your personal data in order to provide the service we have requested.
• As well as disclosures to our service providers, we may disclose your personal data to third parties in the following circumstances:
  • In the event that we sell or buy any business or assets, in which case we may disclose your personal data to the prospective seller or buyer of such business or assets;
  • If we are under a duty to disclose or share your personal data in order to comply with any legal obligation, court or police request, or in order to enforce or apply our terms of use and other agreements, or to protect the rights, property, our customers, or others.

Controlling your personal information

• You may choose to restrict the collection or use of your personal information in the following ways:
• whenever you are asked to fill in a form on the website, look for the box that you can click to opt in to receive information from Tourettes Action by email, sms, post etc.
• if you have previously agreed to us using your personal information for direct marketing purposes, you may change your mind at any time by writing to or emailing us at admin@tourettes-action.org.uk.
• We will not share, sell, distribute or lease your personal information to third parties unless we have your permission or are required by law to do so.
• We may use your personal information to send you promotional information about third parties which we think you may find interesting if you tell us that you wish this to happen. However, you can opt out of receiving this information using the online sign-up forms.
• You may request details of personal information which we hold about you under the Data Protection Act 2018. A small fee may be payable. If you would like a copy of the information held on you, please write to Emma McNally, Data Protection Officer at Tourettes Action, The Meads Business Centre, 19 Kingsmead, Farnborough, Hampshire, GU14 7SR.
• If you believe that any information we are holding on you is incorrect or incomplete, please write to or email us as soon as possible, at the above address. We will promptly correct any information found to be incorrect.

Your data subject rights

• Subject to certain exemptions, and in some cases dependent upon our legal basis, you have certain rights in relation to your personal data. These are:
• to access personal data;
• to rectify / erase personal data;
• to restrict the processing of your personal data;
• to transfer your personal data to another controller (data portability);
• to object to the processing of personal data;
• to object to how we use your personal data for direct marketing purposes;
• to obtain a copy of personal data safeguards used for transfers outside the UK; and
• to lodge a complaint with your local supervisory authority.
• We may ask you for additional information to confirm your identity and for security purposes, before disclosing the personal data requested to you. We reserve the right to charge a fee where permitted by law, for instance if your request is manifestly unfounded or excessive.
• You can exercise your rights by contacting us, using the details set out at the end of this notice. Subject to legal and other permissible considerations, we will make every reasonable effort to honour your request promptly or inform you if we require further information in order to fulfil your request.
• Where we have collected your personal data, you have the right to withdraw your consent.

Complaints

• You have the right to lodge a complaint in relation to the processing of your data. This can be done by contacting the ICO (https://ico.org.uk/).

Retaining and deleting personal data

• We will store your personal information (i) for as long as is reasonably necessary for the purposes for which it was collected pursuant to the provisions of this Privacy Policy and (ii) as long as required by applicable laws and regulations, to resolve disputes, troubleshoot problems or assist with investigations.

• To the extent permitted by applicable laws and regulations, in some circumstances we may store your personal information for longer periods of time, for instance where we are required to do so in accordance with, where applicable, legal, regulatory, tax, accounting requirements, to ensure we have an accurate record of your dealings with us in the event of any complaints or challenges, or if we reasonably believe there is a prospect of litigation relating to your personal information or dealings.

Security

• We are committed to ensuring that your information is secure. In order to prevent unauthorised access or disclosure we have put in place suitable physical, electronic and managerial procedures to safeguard and secure the information we collect online.

• We assume no liability for interception, alteration or misuse of information transmitted over the internet.

How we use cookies

• Like most websites, we use cookies and similar technologies that obtain information from, or store information on, your device.
• A cookie is a small file which asks permission to be placed on your computer's hard drive. Once you agree, the file is added, and the cookie helps analyse web traffic or lets you know when you visit a particular website.
• Certain cookies that we use are "essential" – meaning that they are necessary to make the website function as intended (e.g. cookies that remember information inputted into a form, or cookies used for load balancing). Other cookies are "non-essential" – meaning that they are not necessary for the website to function, but are either used to enhance the functionality of the website, or to help us analyse how the website is used.
• Cookies allow web applications to respond to you as an individual. The web application can tailor its operations to your needs, likes and dislikes by gathering and remembering information about your preferences.
• We use traffic log cookies to identify which pages are being used. This helps us analyse data about web page traffic and improve our website in order to tailor it to customer needs. We only use this information for statistical analysis purposes and then the data is removed from the system.
• Overall, cookies help us provide you with a better website, by enabling us to monitor which pages you find useful and which you do not. A cookie in no way gives us access to your computer or any information about you, other than the data you choose to share with us.
• We also use cookies to remember the pages that you like to see on the website. This happens if you select to view information for a specific user group, the option to do so appears at the top of the website and is available for adults, young people, parents, doctors and teachers. We use a cookie to remember your selection so that the next time you visit the website you see all the information you want to.
• To change your cookie preferences for this website, please click here and then “Select preferences” on the pop-up cookie banner.

Cookies used by our service providers

• Our service providers use cookies and those cookies may be stored on your computer when you visit our website.
• We use Google Analytics to analyse the use of our website. Google Analytics gathers information about website use by means of cookies. The information gathered relating to our website is used to create reports about the use of our website. Google's privacy policy is available at: https://www.google.com/policies/privacy/.
• You can choose to accept or decline cookies. Most web browsers automatically accept cookies, but you can usually modify your browser setting to decline cookies if you prefer. Please note that this may prevent you from taking full advantage of the website. 

Helpdesk

• All contact with the Tourettes Action Helpdesk is treated as confidential, unless we feel that there is a risk to the caller or another individual, when we may break confidentiality.
• Emails and Live Chats to the Helpdesk are logged for reporting purposes which help us provide a better service. By providing us with your contact details you consent that we can store them on our secure database. The storage of this data conforms with the details in our Privacy Policy (above).
• We use Live Chat software on our website (a messaging platform that enable live communication), this is provided by Click4Assistance, a third party UK based Software Company. Information regarding how the data is processed and stored can be viewed here. 
• If you do not wish for us to store your data you can contact us at any point. Please refer to the section above entitled ‘controlling your personal information’.

Newsletter

• By signing up to the Tourettes Action newsletter you give us permission to email you with information and news relevant to Tourettes Action and Tourettes Syndrome.
• We will store your data securely within a third party system (mailchimp.com) and neither us or they will share it with any other parties without your permission.
• If at any point you wish to be removed from our newsletter mailing list please contact us at help@tourettes-action.org.uk or click ‘unsubscribe’ on the bottom of the newsletter.

Social media

• The Tourettes Action website contains links to pages maintained by us on third party social media websites.
• The terms specified on those websites will apply to your use of those websites in addition to these Terms and Conditions of Website Use.

Online shop

• Purchases from our online shop are logged on our secure database. We store your contact details and information about your purchase for our financial records. We do not store credit card details nor do we share customer details with any third parties.
• We aim to dispatch all orders from our shop within 7 working days of receiving your order. Orders are sent by Royal Mail, second class post, unless otherwise indicated.
• Postage includes delivery in the UK. If you are outside the UK please contact us to discuss additional postage fees that may be applicable.
• To request a refund or cancel an order, please email help@tourettes-action.org.uk. We aim to respond and action all such calls and emails within 7 working days.

You can contact us:

Should you have any queries in relation to our use of your personal data, please contact us using the details provided below.

• By post, to the postal address given below
• Using our website contact form
• By email, help@tourettes-action.org.uk

Data protection officer

• Our data protection officer's contact details are: Emma McNally, The Meads Business Centre, 19 Kingsmead, Farnborough, Hants, GU14 7SR, help@tourettes-action.org.uk.

Changes to this Privacy Policy

• We may from time to time, make changes to this Privacy Policy. We suggest you check back regularly to check to see if there have been any changes to this Privacy Policy.

This policy was last updated August 2024.