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Support
Information and application forms for support for people with Tourette Syndrome.
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Leaflets
A Guide to Personal Independence Payment
A guide from TA to Personal Independence Payments.
Education EHC - COP guide for parents
This guide is for parents and carers of children and young people aged 0-25 years who have special educational needs (SEN) or a disability.
Factsheet - Accessing Services
This factsheet outlines what Equality law requires of service providers to make sure that disabled people are not put at a dis-advantage to non-disabled people; and also explains what action to take if you do experience barriers to accessing a service.
Factsheet - benefits and TS
This factsheet outlines a list of benefits which people with TS may be entitled to, and a list of organisations who offer specialist benefit advice and information.
Factsheet - Disability Rights
TS is considered a disability under UK law which prohibits people with the condition being discriminated against because of it.
Children & young people
Factsheet - EHCP and TS
A comprehensive guide to the EHCP process.
Download 1692794160_Factsheet---Education,-health-and-care-plans.pdf
Factsheet - housing and TS
We have outlined some potential housing issues that people with TS could face, and how you might look to resolve them.
Factsheet - social taboos and TS
A factsheet looking at coprophenomena, the involuntary expression of socially unacceptable words or gestures.
Factsheet - transport and TS
This factsheet discusses what challenges may arise when using different modes of transport, and suggestions to help improve your travel experiences.
For professionals
Factsheet for Employers
We have created this factsheet for employers including information about TS and the Equality Act, reasonable adjustments, interview tips and some useful examples of adapting the social, physical and sensory environments in the workplace for an employee with TS.
The Education Health and Care Needs Assessment (EHCNA)
A simple guide on what to expect when applying for an Education Health and Care Plan (EHCP Plan).
Tic Attack document only - A4 Easy print
Easy print version of the A4 Tic Attacks document, for adults and children.
Tic Attack document only - A4 Easy print, child friendly version
Adapted version of the Tic Attacks document for children, with images.
TS Passport - A4 Easy print
Easy print version of the TS Passport for adults and children.
TS Passport with Tic Attacks sheet - A4 Easy print
Easy print version of the TS Passport for adults and children, with Tic Attacks sheet.
Children & young people
TS Social Story
A learning tool to help support the exchange of information between children with TS and their teachers, friends and others in social situations.
Report
Children & young people
Differences and similarities of ASD and Tourette Syndrome
Chartered research psychologist and freelance neurodiversity consultant Seonaid Anderson is the author of an interesting article featured in the 2021 Jan/Feb edition of SEN magazine.
The article compares the many differences and similarities between Tourette Syndrome (TS) and Autism Spectrum Disorder (ASD), such as prevalence, symptoms, co-occurring conditions and movements which are associated with each condition.
Videos
About TS
University of Nottingham research study into online support groups
An online survey exploring users’ experiences of using online support groups for tic disorders and Tourette syndrome
Books
Anger management games for children
This practical handbook helps adults to understand, manage and reflect constructively on children's anger.
Can I Tell You About Tourette Syndrome? - Mal Leicester
A guide about TS for friends, family and professionals.
Late, Lost & Unprepared - A parents' guide to helping children with Executive Functioning.
Executive functions are the cognitive skills that help us manage our lives and be successful. This book is suitable for parents of children from primary school through high school who struggle with: Impulse Control; Cognitive Flexibility; Initiation; Working Memory; Planning & Organising; and, Self-monitoring.
Tics and Tourette Syndrome: A Handbook for Parents and Professionals
This guide to tic disorders and Tourette Syndrome tackles problems faced both at home and at school.
Website links
Contact a family website
Contact a Family is a charity that works to support the families of disabled children.
GOSH - TS information pack
The experts at Great Ormond Street Hospital (GOSH) have put together an information pack for young people and families on Tourette Syndrome (TS). It includes information on anger management and managing tics.
