Lived Experience of TS Research Study

Posted on 3 July 2024 by Pippa McClounan

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Exploring the success of pharmacological vs art-based intervention

This study focuses on the lived experiences of 18–25-year-old adults with Tourette Syndrome including their self-identity and approaches to self-care. It will investigate the economic and social pressures that individuals face due to their tics, including greater unemployment rates, more strain on social and familial relationships and avoidance of large public spaces. Participants will be asked to question on the pressure to supress tics, tic sensations, attitude to tics- whether humour is used as a coping strategy and intervention attitudes. Social and resultant economic pressures can reduce access to interventions, as well as people’s perceptions of and ability to engage with such interventions.

Discussing the lived experience of those with TS is important because therefore important to identify and recommend successful interventions.

The researcher is a neurodivergent & disability activist and advocate with 3 years’ experience working in EDI and accessibility at institutions such as The University of Exeter, The National Children’s Choir of Great Britain, and The Northcott Theatre. They are 22 years old and have been diagnosed with Tourette Syndrome, ADHD, Dyslexia and Dyspraxia. This study forms the completion of their Msc Psychology conversion at The University of Exeter. In 2022 they worked with Ione Georgiakis from Tourettes Action, and the University of Exeter EDI team to run workshops to
improve accessibility and inclusion for students with Tourette’s.

Email mph220@exeter.ac.uk for more information and to sign up or scan the QR code on the advert above.

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