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Experience of self-identification, diagnosis & support for adults with tic disorders
Posted on 17 May 2022 by Pippa McClounan
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A new study to understand the diagnostic journey experience of adults with tic disorders in the UK
Researchers at the University of Hertfordshire and Nottingham are conducting a new research study and would value hearing about your diagnostic journey or self-identification of having a tic disorder (including Tourette’s) in adulthood. The study is open to adults who initiated to seek validation, self-identified or obtained a diagnosis of tic disorders after 18 years of age.
The study aims to gain information relating to your diagnostic or self-identification experiences, in hopes to understand the barriers, facilitators, medical mechanism, and resultant support structure for tic disorder diagnosis in adulthood in the UK and inform improvement in available services.
If you decide to take part this will involve completing an online survey and an option to further participate in a semi-structured online interview which can be organised at a time convenient to you. The survey will include details such as age, diagnostic status, time of onset, sex and ethnicity and some questions regarding healthcare provider interaction.
Additionally, should you choose to participate in our interviews, you will be required to complete a consent form, documenting your understanding of your participation and the purpose of the study.
For more information on this study, please email Danni Phoenix-Kane on d.phoenix-kane@herts.ac.uk.
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