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The Tourettes Action Blog

The Tourettes Action blog gives people with Tourette Syndrome (TS) a space to talk about how the condition affects them. We hope that by explaining what life is really like to have or to live with someone who has TS, we can fight the stigma about the condition.

If you would like to write about your experiences of TS, we would love to hear from you. Please email us to find out more and discuss what you might like to write about.


  • The Importance of Peer Support

    Tracey Francis is a freelance writer and researcher with a particular interest in improving the chances and life choices available to young people who face barriers to inclusion. She was awarded a Travel Fellowship by the Winston Churchill Memorial Trust to explore the experiences of young people with Tourettes, Asperger’s Syndrome or ADHD in Italy, Norway and the Czech Republic after they leave school. Her findings, taken from conversations with 50 young people and/or their family members, are the basis of a new report offering practical insights and recommendations to improve the experiences of this group as they make the transition to adulthood. For full details of the project, or to download a copy of the final report, visit www.lifeontheedgeofthecliff.com

    Posted Thu 20th Oct 2016 at 13:28
    by Tracey Francis

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  • Anatomically Speaking - Adrian Reynolds tells us about his tics.

    I have been asked many times exactly what Tourette’s does to me, how it manifests day to day. There is such a frequent shift in severity, frequency, movements and physical toll that it’s of limited value to produce a simple list.

    Posted Thu 6th Oct 2016 at 11:48
    by Adrian Reynolds

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  • Gogglebox: Meet The McCormicks!

    Georgia, Scott and 14 year old Isaac regularly invite 6 million viewers into their living room on the hit TV show Gogglebox. Read here how the self-proclaimed 'quirky' family have endeared themselves into the hearts of many, and their mission to raise awareness and eradicate stigma by being open and honest about Isacc's Tourette Syndrome.

    Posted Tue 27th Sep 2016 at 10:36
    by Georgia McCormick

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  • School Experiences

    The first day of any school year is a particularly poignant moment for many students – new teachers and students, new books, and most of all, a year older and closer to the top of the school. For me, that first day of the new year was also a marker for the beginning of the end, as I am now in Year 13, the last year of school. So, in this post, I am going to talk about my school career, and will cover both the good and the bad, as well as my journey to where I am now.

    Posted Thu 8th Sep 2016 at 08:13
    by Charlotte Rushton

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  • Jeremy Stern, Consultant Neurologist & 2016's ESST's conference in Warsaw.

    Tics are more intensively investigated than you may think

    Posted Tue 19th Jul 2016 at 11:36
    by Jeremy Stern

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older posts later posts

Events

Wednesday 27 November 19:00

Adults with TS Support group, Online 7pm - 8pm

Thursday 28 November 10:00

Parent/Caregiver Online Coffee Morning, Online 10am - 11am

Friday 29 November 10:00

Q&A Drop-in session, Online 10am - 11am

Contact us

If you have any questions we would love to hear from you

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