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The Tourettes Action Blog

The Tourettes Action blog gives people with Tourette Syndrome (TS) a space to talk about how the condition affects them. We hope that by explaining what life is really like to have or to live with someone who has TS, we can fight the stigma about the condition.

If you would like to write about your experiences of TS, we would love to hear from you. Please email us to find out more and discuss what you might like to write about.


  • Being a Research participant: A child and Parent's view.

    Calum took part in 'a naturalistic study investigating sleep and cognitive learning in children with and without sleep disorders' run by the University of Nottingham. Calum talks first about his experience, followed by his mum Michelle. They hope by reading this you'll be inspired to get involved with research too!

    Posted Tue 19th Dec 2017 at 13:01
    by Calum and Michelle Gibson

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  • Sophie and Bob

    Hi there, my name is Sophie. I was diagnosed with Tourette's aged 8 and I am 10 years old now, I am from Glasgow. My mum (Dawn) calls me squishy, this is because I always have at least two squishes with me at school to help me try and make my big tics into smaller ones. I find them relaxing to look at and I love the feeling I get when I can squeeze them with all my might.

    Posted Mon 4th Dec 2017 at 12:00
    by Sophie Mullen

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  • Mum of two, Lucy Toghill talks about her journey to becoming a TS mum.

    This is my fight, my journey and no one is more qualified than me in the knowledge of my children.

    Posted Wed 29th Nov 2017 at 12:50
    by Lucy Toghill

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  • Here's what I want to tell other students about Tourette syndrome

    Serena Bhandari tells us why interrupting lectures with her vocal tics would be less embarrassing if her classmates were more aware of the condition.

    Posted Mon 30th Oct 2017 at 12:00
    by Serena Bhandari

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  • Sophie Sharp's poem as a parent of a child with Tourette Syndrome.

    Sophie and her son, Denver, attended TicFest North and Sophie had this to say: ‘Thank you all so much for including us in Tic Fest. It was wonderful to see my son accepted by his peers and having the freedom to be himself without judgement.’

    Posted Thu 26th Oct 2017 at 14:11
    by Sophie Sharp

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