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The Tourettes Action Blog
The Tourettes Action blog gives people with Tourette Syndrome (TS) a space to talk about how the condition affects them. We hope that by explaining what life is really like to have or to live with someone who has TS, we can fight the stigma about the condition.
If you would like to write about your experiences of TS, we would love to hear from you. Please email us to find out more and discuss what you might like to write about.
My experience of TicFest
PhD student, Camilla Babbage, joined the TicFest North event in September to gain further insight into the day to day lives of young people and families living with TS. Camilla is carrying out research at the University of Nottingham to develop a tool that will help young people with TS feel better in their daily lives.
Posted Wed 10th Oct 2018 at 10:00
TicFEST North 2018
A quick de-brief on the final TicFEST event of the year from Tourettes Action's office manager and seasonal ticfester, Pippa McClounan
Posted Mon 10th Sep 2018 at 12:01
My experience of being a research participant
Ashley talks about the research he was recently involved with at University College London
Posted Tue 4th Sep 2018 at 10:00
Charley Matthews talks about her empowering experience at TeenFest, and why her tics volunteered her to do the washing up!
Tourette Syndrome for me has been a scary, embarrassing and lonely experience.
Posted Wed 29th Aug 2018 at 10:27
14 Year old Tayla-Leigh opens up about her struggles with TS and just how much TeenFest 2018 meant to her.
Since I was little I have been in and out of hospital having tests to try and diagnose what was wrong with me. I was diagnosed with TS on the 13th of June 2017 after having tics for 2 years. No one around me could understand I couldn't help the tics and I kept getting told to stop messing about.
Posted Tue 14th Aug 2018 at 09:33
