My experience as a research participant

Posted 21hrs ago
by Ash Curry

Share

If you've ever considered taking part in a research study, read about Ash's positive, rewarding experience.

Hi, my name is Ash.

I was first diagnosed with TS aged 35, although it was very clear I had it from a young age (5). Now aged 56 , I live a life mostly where TS is no longer problematic.

Over the last 5 years I have been heavily involved with research into TS , not only as a lay person, but also as a participant. Taking part in research has been an amazing experience, working with some great people at Nottingham university, who are really understanding of the condition , and are so very caring whilst research is taking place.

I've had my head wired up, electrodes placed on my wrists (part of the neupulse wristband research) and involved going into a mri scanner.

My recent visit involved having my brain looked at in response to TMS (transcranial magnetic stimulation) to look at the way each motor regions in the hemisphere interact with each other.  It's non-invasive and no pain is felt at all.

Other Studies I have been involved with are online studies, where you are required to tick /click a response to questions that are asked. Sometimes the questions can be about other co-morbid conditions that run alongside TS, like ocd for example. I have found them all easy and clear to follow.

Importantly the interaction between those doing the research and myself has been great, where they show a great understanding of the conditions and also offer compassion.

It's so important that we put ourselves forwards for research, as it can help all those that live with TS and those that live and care for us too. It's a really great experience being involved, and just important seeing the end results from the research.

So if you're thinking about getting involved, go for it! You may also even get paid for your time, and expenses are covered if it’s an in-person research study (rather than an online one).

Take part and do your bit for the TS community of tomorrow - take it from me.... it's a very rewarding feeling!

Ash

Return to blog