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Managing TS
Information about how to treat and manage Tourette Syndrome.
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Leaflets
About TS
ACAMH: The Bridge, Tourette Syndrome edition
ACAMH is a registered charity with over 60 years’ experience in promoting the advancement of child & adolescent mental health. Their online publication - The Bridge - brings together research digests, and Tourette Syndrome is the focus of their February 2019 edition.
Adverse behaviour
A factsheet looking at behaviour issues in people with TS, including a section for parents on disciplining children and young people for parents.
Behavioural Therapist ListThis is a list of psychological therapists in the UK who offer Behavioural Therapy & Cognitive Behavioural Therapy for the treatment of tics & Tourette Syndrome. Some of these practitioners work independently and others practice within a multidisciplinary service.
- Consultant List
This is a list of consultants who have indicated they have specialist experience in diagnosing and treating Tourette Syndrome.
Factsheet - anger and TS
A factsheet looking at anger issues in people with Tourette Syndrome, including ways to manage anger attacks.
Factsheet - behavioural therapies
A factsheet looking at behavioural therapies, including Habit Reversal Therapy and Comprehensive Behavioural Intervention for Tics.
Factsheet - Coprolalia
Coprophenomena is the involuntary expression of socially unacceptable words or gestures including Coprolalia, Coprographia and Copropraxia.
Children & young people
Factsheet - Exam revision tips
This factsheet offers information on what exam access arrangements are available to someone with TS and tips on how to best prepare for exams.
Factsheet - pain and TS
A factsheet looking at how tics can cause pain and ways to control and manage the pain.
Children & young people
Factsheet - Transitioning to higher education: A student's guide
A helpful guide with advice and information to aid the smooth transition from further to higher education.
Download 1727102218_Factsheet---Transitioning-to-higher-education---students.pdf
Children & young people
Factsheet - Transitioning within the education system: A parent/carers guide
A helpful guide on managing the transition process, with ideas and strategies to support what can be a challenging time for those with TS.
Download 1727102298_Factsheet---Transitioning-within-the-education-system---parent-carers-(1).pdf
How to get good sleep
The current lockdown means that many of us have disrupted routines and are largely confined to our homes. This can affect our sleep cycle and our mood. Sleep is essential for learning, growth, cell repair and memory consolidation. Here are some easy steps we can all take to ensure we get good quality sleep, even at times of uncertainty.
Managing tics
We have provided a list of creative ways to manage tics, based on feedback from people in the TS community.
Tic Attack document only - A4 Easy print
Easy print version of the A4 Tic Attacks document, for adults and children.
Tic Attack document only - A4 Easy print, child friendly version
Adapted version of the Tic Attacks document for children, with images.
TS Passport - A4 Easy print
Easy print version of the TS Passport for adults and children.
TS Passport with Tic Attacks sheet - A4 Easy print
Easy print version of the TS Passport for adults and children, with Tic Attacks sheet.
Children & young people
TS Social Story
A learning tool to help support the exchange of information between children with TS and their teachers, friends and others in social situations.
What If...a practical guide to possible problems
A “What if” board is a strategy for making plans to combat potential difficult situations. It helps us to identify what our worries are and make plans to manage them.
It’s a simple but effective strategy for managing big changes or common problems.
During the current Covid-19 pandemic people are facing unprecedented changes to their daily lives, and are coping with anxieties related to health, finances and worries about family members.
To support you we have compiled responses to some potential “What ifs” in the hope that they may provide you with some support and guidance at this difficult time.Report
About TS
ACAMH: The Bridge, Tourette Syndrome edition
ACAMH is a registered charity with over 60 years’ experience in promoting the advancement of child & adolescent mental health. Their online publication - The Bridge - brings together research digests, and Tourette Syndrome is the focus of their February 2019 edition.
Managing TS
Psychology at work - improving wellbeing and productivity in the workplace
Psychology is the scientific study of mind and behaviour, from communication and memory to thought and emotion. This report from the British Psychological Society can be used by policy makers, commissioners, practitioners and employers to apply relevant psychological theory, evidence and practice to design interventions that work with human behaviour, not against it.
Download 1511349992_Psychology-at-work---improving-wellbeing-and-productivity-in-the-workplace.pdf
Videos
About TS
Anger and Tourette Syndrome: Top tips and coping strategies
Dr Maria Hadji-Michael, Clinical Psychologist at Great Ormond Street Hospital defines what anger difficulties are in Tourette Syndrome, and provides information and guidance to parents and schools on how to support a young person experiencing these difficulties
About TS
Comprehensive Behavioral Intervention for Tics Pt. 2
Comprehensive Behavioral Intervention for Tics Part 2 by, Douglas Woods. Ph.D, Professor of Psychology @ the University of Wisconsin-Milwaukee. Taken from the DVD, "Comprehensive Behavioral Intervention for Tics"; available through the Tourette Association.
About TS
Comprehensive Behavioral Intervention for Tics Pt. 3
Comprehensive Behavioral Intervention for Tics Part 3 by, Douglas Woods. Ph.D, Professor of Psychology @ the University of Wisconsin-Milwaukee. Taken from the DVD, "Comprehensive Behavioral Intervention for Tics"; available through the Tourette Association.
About TS
Comprehensive Behavioral Intervention for Tics: Part 1
Comprehensive Behavioral Intervention for Tics Part 1 by, Douglas Woods. Ph.D, Professor of Psychology @ the University of Wisconsin-Milwaukee. Taken from the DVD, "Comprehensive Behavioral Intervention for Tics"; available through the Tourette Association.
About TS
Dance, Yoga and how it's helped my TS
Clair Beckett, professional dancer, yoga teacher and theatre company director talks about her experience of movement based practices and how they support her TS.
Managing TS
Do-IT talking Neurodiversity with Paul Stevenson, Tourette Syndrome Advocate
A short video interview about Neurodiversity focusing on Tourette Syndrome. Professor Amanda Kirby of Do-IT Solutions discusses Neurodiversity and what is important about it with Paul Stevenson, Tourette Syndrom Advocate.
About TS
James McCraken: Treatment options for tic disorders and comorbidities
In November 2017, Nottingham University held an open lecture with three speakers from the United States, all of whom are specialists in Tourette Syndrome. In this video, James T McCracken M. D., Professor of Child Psychiatry Director, Division of Child & Adolescent Psychiatry, Dept of Psychiatry & Bio-Behavioural Sciences at UCLA, gives an overview of the role of medical treatments in the treatment of TS and co-occurring conditions.
About TS
John Piacentini: Environmental influences and behaviour therapy
In November 2017, Nottingham University held an open lecture with three speakers from the United States, all of whom are specialists in Tourette Syndrome. In this video, John Piacentini PhD ABPP Professor of Psychiatry & Bio-Behavioural Sciences at UCLA discusses the environmental influences on tics, and behaviour therapy.
Rupert shares his experience of CBIT therapy with Tourettes Action
Watch this informative video which shows the benefits of Comprehensive Behavioral Intervention for Tics (CBIT).
Tic Talk: School Transition
This video is part of our 'Tic Talk' series, in which we have collaborated with Specialist Teacher - Katie Skinner - to bring strategies and advice to children, parents and teachers about topics relating to school and TS.
What makes me tic
Find out how these inspiring young people manage their condition and other people's reaction throughout their everyday lives.
What TS means to me
Meet Logan, he has Epilepsy, Tourette Syndrome, Autism Spectrum Disorder (Asperger’s), Attention Deficit Hyperactivity Disorder (ADHD) and Hypermobility Disorder. These conditions can make life difficult at times, but Logan has a great attitude to life that supports him in doing everything he wants to do. In this video he explains what having TS means to him.
Books
Nix Your Tics!: Eliminate Unwanted Tic Symptoms: A How-To Guide for Young People
Dr. B. Duncan McKinlay, Psychologist (‘Dr. Dunc’) has Tourette Syndrome. That means he’s been living with both motor tics (movements he has a hard time stopping) and phonic tics (noises he has a hard time stopping) for most of his life.
Second Chances - A young person's guide to emotional resilience
An inspiring book that looks at various ways in which young people can build emotional resilience to help them cope with the stresses and strains of being a young person with health issues.
About TS
The Tourettes Survival Kit: Tools for Young Adults with Tics
Struggling to manage your tics in the classroom? Worried about your tics in a job interview or on a first date? This survival kit will give you the tools to survive and thrive in every location - at home, school, work or out with friends. Presenting everyday situations, from schools and exams through to driving and dates, this guide provides simple solutions to common problems and concerns. Dr Tara gives her top tips for managing tics, alongside behavioural therapy techniques for stress management and strategies for coping with commonly co-occurring conditions such as ADHD, OCD and anxiety.
Tic Disorders - A Guide for Parents and Professionals
Uttom Chowdhury and Tara Murphy. Foreword by Suzanne Dobson, Chief Executive of Tourettes Action UK.
Links
Children & young people
Online ID card application form
Complete your application for a TS ID card online and submit all supporting documents plus a passport size photo (Jpeg).
Click here to apply online
Website links
"A smartphone App helped me treat my Tourettes"
The Telegraph reports on the use of mobile apps to help people access pioneering treatments for TS.
How can brands engage better with customers with invisible disabilities?
Serena Bhandari joined Martin Newman from Consumer Focus (a podcast which aims to educate, inform and provoke debate on how businesses can offer the best possible experience and service to their customers).to discuss her experiences around having Tourette Syndrome, and how stores and restaurants can make sure that staff can assist customers with ‘invisible’ disabilities.
Press cuttings
"A smartphone App helped me treat my Tourettes"
The Telegraph reports on the use of mobile apps to help people access pioneering treatments for TS.
About TS
New Scientist article: People with Tourette's may find it easier to pick up new skills
People with Tourette's syndrome seem to have enhanced memory that could make them better at learning tasks unconsciously, such as speaking a second language or driving a car.
