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Adults & TS
Information related to adults with Tourette Syndrome.
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Leaflets
About TS
Factsheet - A guide to the Genetics of Tourette Syndrome
Since the 1980s it has been known that Tourette Syndrome can run in families. Probably most people with TS (but not all) do have other family members with some signs of the condition, including very mild tics or other features such as ADHD or OCD rather than tics.
Download 1482150066_TA-Guide-to-the-Genetics-of-Tourette-Syndrome.pdf
Factsheet - Coprolalia
Coprophenomena is the involuntary expression of socially unacceptable words or gestures including Coprolalia, Coprographia and Copropraxia.
Children & young people
Factsheet - Exam revision tips
This factsheet offers information on what exam access arrangements are available to someone with TS and tips on how to best prepare for exams.
Children & young people
Factsheet - Transitioning to higher education: A student's guide
A helpful guide with advice and information to aid the smooth transition from further to higher education.
Download 1727102218_Factsheet---Transitioning-to-higher-education---students.pdf
Adults & TS
Factsheet for Employees
We have put some information together that looks at steps to employment, disclosing your condition, managing stress at work, how to deal with discrimination in the workplace and the responsibility of an employer including reasonable adjustments.
Tic Attack document only - A4 Easy print
Easy print version of the A4 Tic Attacks document, for adults and children.
Tic Attack document only - A4 Easy print, child friendly version
Adapted version of the Tic Attacks document for children, with images.
TS magazine feature
Final year Journalism student, David Conway, from the University of Sheffield has created a magazine article focusing on the stories of three individuals with TS, including football's international goalkeeper Tim Howard, whilst also examining the facts behind the condition.
TS Passport - A4 Easy print
Easy print version of the TS Passport for adults and children.
TS Passport with Tic Attacks sheet - A4 Easy print
Easy print version of the TS Passport for adults and children, with Tic Attacks sheet.
Report
Children & young people
Differences and similarities of ASD and Tourette Syndrome
Chartered research psychologist and freelance neurodiversity consultant Seonaid Anderson is the author of an interesting article featured in the 2021 Jan/Feb edition of SEN magazine.
The article compares the many differences and similarities between Tourette Syndrome (TS) and Autism Spectrum Disorder (ASD), such as prevalence, symptoms, co-occurring conditions and movements which are associated with each condition.
Neurodiversity at work
This report highlights the benefits of having a 'neurodiverse' workforce and aims to identify policies and practices to ensure the integration of people with neurological conditions into mainstream employment.
Managing TS
Psychology at work - improving wellbeing and productivity in the workplace
Psychology is the scientific study of mind and behaviour, from communication and memory to thought and emotion. This report from the British Psychological Society can be used by policy makers, commissioners, practitioners and employers to apply relevant psychological theory, evidence and practice to design interventions that work with human behaviour, not against it.
Download 1511349992_Psychology-at-work---improving-wellbeing-and-productivity-in-the-workplace.pdf
Secondary Tourettes - Transition to Secondary School. SEN Magazine
Tourettes Action Research Manager Dr Seonaid Anderson, looks at how to help children with Tourette Syndrome handle the difficult transition to secondary school.
Videos
About TS
A Fixers campaign led by Sophia Savidis-Macris
‘The media tends to only show very extreme versions of Tourette’s and that’s quite frustrating for those of us who have less noticeable symptoms.’
Sophia Savidis-Macris wants to highlight the challenges she faces living with Tourette’s syndrome so she can tackle some of the misconceptions surrounding the condition.
This story was broadcast on ITV News London in January 2016.About TS
Ability Magazine Interview with artist - Liu Fusheng
Liu Fusheng, a larger than life artist lives in Singapore and has Tourette syndrome. Despite the severity of his symptoms, he was misdiagnosed until his college years. Liu's art flourishes and his eccentric style continues to evolve.
Chelsea White talks about life with Tourette Syndrome
Comedian Chelsea White talks about her life with Tourette Syndrome in this series of seven short videos.
About TS
Dance, Yoga and how it's helped my TS
Clair Beckett, professional dancer, yoga teacher and theatre company director talks about her experience of movement based practices and how they support her TS.
Discussion with Greg Storey who has TS - This Morning 17th Sept 2012
Discussion with Greg Storey who has Tourette Syndrome on This Morning, 17th Sept 2012.
Managing TS
Do-IT talking Neurodiversity with Paul Stevenson, Tourette Syndrome Advocate
A short video interview about Neurodiversity focusing on Tourette Syndrome. Professor Amanda Kirby of Do-IT Solutions discusses Neurodiversity and what is important about it with Paul Stevenson, Tourette Syndrom Advocate.
About TS
Jamie Sanders on Tourettes jokes
Jamie discusses the misuse of the word Tourettes in popular culture, and how this limits people's understanding of the condition
Jess Thom is interviewed on This Morning, 9 May 2012
Touretteshero co-founder Jessica Thom talks to Holly Willoughby & Philip Schofield about living with TS and how it's created new opportunities for creativity and learning. Find out more at www.touretteshero.com.
Jess, Ruth and Luke talk about life with TS to Australian TV show
Australian TV show 'Sunday Night' spends time with Jess, Ruth and Luke to gain insight into the reality of living with TS
Russian Dolls
‘Russian Doll’ is a film made by Clair Beckett in collaboration with Street Factory and Red5 films, as part of a project called 'Hip Hop Hope' funded by the Arts Council England.
Shane Fistell: A portrait of Tourette Syndrome
Despite the adversityShane has faced, his drive is strong to express his creativity and be out in the world.
About TS
Things Not To Say To People With Tourette Syndrome
The fantastic BBC3 series 'Things Not To Say To People', that helps break down stereotypes and myths about social groups have made an episode on Tourette Syndrome.
Tourette's Syndrome - Life With Tourette's
Australian news programme talks to Ruth, Jess and Luke who have TS.
About TS
Tourettes and how to be unstoppable
I constantly twitch, jerk and today love being an 837 + performance keynote speaker living with the rare neurological disorder Tourettes Syndrome www.itwitch.com
Touretteshero Saturday Night Show Interview 9th March 2013
Touretteshero co-founder Jess Thom's live interview with Brendan O'Connor on the RTÉ Saturday Night Show (9th March 2013).
About TS
University of Nottingham research study into online support groups
An online survey exploring users’ experiences of using online support groups for tic disorders and Tourette syndrome
Children & young people
Yusuke Osada: Finding solace in the piano
Yusuke Osada is a talented pianist who finds that his tics stop when he plays the piano. In this inspiring video, Yusuke talks about his relationship with music and urges other people with TS to take up an instrument and see what happens...
Books
Breaking Free from OCD: A CBT Guide for Young People and Their Families
This self-help book for young people aged 10-16 is for adolescents who have suffered from, or know someone who has suffered from, OCD, their families, teachers, carers, and mental health professionals.
Busy Body: My Life with Tourette's Syndrome
Nick van Bloss' memoir gives an insight into TS, and allows us into the heart and mind of a wonderfully witty and talented man.
Front of the class
Brad Cohen has TS and in this book outlines the journey he took to become a teacher.
About TS
The Tourettes Survival Kit: Tools for Young Adults with Tics
Struggling to manage your tics in the classroom? Worried about your tics in a job interview or on a first date? This survival kit will give you the tools to survive and thrive in every location - at home, school, work or out with friends. Presenting everyday situations, from schools and exams through to driving and dates, this guide provides simple solutions to common problems and concerns. Dr Tara gives her top tips for managing tics, alongside behavioural therapy techniques for stress management and strategies for coping with commonly co-occurring conditions such as ADHD, OCD and anxiety.
Tic Disorders - A Guide for Parents and Professionals
Uttom Chowdhury and Tara Murphy. Foreword by Suzanne Dobson, Chief Executive of Tourettes Action UK.
Whatever Happened To Twitch Morgan?: A Life with Tourette's Syndrome by David Jowsey
WHATEVER HAPPENED TO TWITCH MORGAN? 'An approachable and uplifting story of life with Tourette's Syndrome'
Links
Coprolalia Myths Demystified
An article looking at the reasons behind coprolalia and inappropriate behaviour.
Children & young people
Online ID card application form
Complete your application for a TS ID card online and submit all supporting documents plus a passport size photo (Jpeg).
Click here to apply online
Website links
"A smartphone App helped me treat my Tourettes"
The Telegraph reports on the use of mobile apps to help people access pioneering treatments for TS.
How can brands engage better with customers with invisible disabilities?
Serena Bhandari joined Martin Newman from Consumer Focus (a podcast which aims to educate, inform and provoke debate on how businesses can offer the best possible experience and service to their customers).to discuss her experiences around having Tourette Syndrome, and how stores and restaurants can make sure that staff can assist customers with ‘invisible’ disabilities.
Press cuttings
"A smartphone App helped me treat my Tourettes"
The Telegraph reports on the use of mobile apps to help people access pioneering treatments for TS.
An insider's guide to Tourette's syndrome (October 2012)
Article from the Guardian online, Sunday 14 October 2012. "Jessica Thom squeaks, swears, beats her chest and laughs. Here she describes living with her complex and mystifying condition."
About TS
New Scientist article: People with Tourette's may find it easier to pick up new skills
People with Tourette's syndrome seem to have enhanced memory that could make them better at learning tasks unconsciously, such as speaking a second language or driving a car.
TS magazine feature
Final year Journalism student, David Conway, from the University of Sheffield has created a magazine article focusing on the stories of three individuals with TS, including football's international goalkeeper Tim Howard, whilst also examining the facts behind the condition.
USA Goalkeeper Tim Howard On Playing With TS (May 2013)
USA and Everton goalkeeper, Tim Howard, talks about how he is able to play football whilst having TS. Article from Next Impulse Sports.
