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Health and Social Care Training: Understanding and Supporting Individuals with Tics and Tourette syndrome
Last edited: 12-02-2025
We currently offer two specialised virtual training sessions for Health and Social Care Professionals Option 1: Introduction to Tics and Tourette syndrome for Health and Social Care Staff Length:...
Last edited: 05-02-2025
Study on the developmental characterisation of explosive outbursts in young people with Tourette syndrome This project will provide a better understanding of the individual factors that may contribute...
Tourettes Action Helpdesk
Last edited: 04-02-2025
You can reach us in a number of different ways: Live chat: Instant support via our website available Monday to Friday 10am – 3pm Contact the Helpdesk: Send a contact form and we will get...
TEENfest
Last edited: 04-02-2025
What is TEENfest? TEENfest offers the chance for teens with TS to meet other teens for a weekend of making friends, mutual support and fun. Many young people with TS have never met anyone else with tics...
Our Trustees
Last edited: 30-01-2025
TA trustees Marc Lewis Chair of Trustees Marc became a trustee in 2020 and has been a supporter of the charity for a number of years. Marc has two daughters, who both have TS. Leading up to...
Previous projects
Last edited: 27-01-2025
2024 Research Studies Online learning resource for GPs This project from the University of Nottingham aimed to design an online intervention to improve GPs knowledge of tic disorders. Both healthcare...
Our TS Friendly Organisations
Last edited: 06-01-2025
All recognised organisations have completed a bespoke TA training session and have shown a commitment to supporting and understanding the needs of people with TS. In recognition of their support,...
#TourettesWeMatter
Last edited: 14-11-2024
What’s the issue? There are over 300,000 children and adults living with tic disorders in the UK. Tics are usually lifelong, meaning that we need services for children, adolescents and adults. People...
Causes of Tourette syndrome
Last edited: 06-11-2024
The brain Brain scanning in people with TS has shown that there are some parts of the brain that function differently or have a slightly different size e.g. some of the structures in the motor circuits...
What is Tourette syndrome?
Last edited: 06-11-2024
Key features The key features are tics – involuntary sounds and movements, which must be present for at least 12 months to meet the diagnostic criteria. Up to 85% of people with TS will also experience...
About TS
Last edited: 06-11-2024
Find out more about TS In this section discover: What TS is The symptoms of TS What causes TS The steps to getting diagnosed with TS Different treatments for TS Answers to frequently asked questions...
About TA - Our Mission, Vision, Values and Goals
Last edited: 28-10-2024
Our Vision We want a world where people with Tourette syndrome are: accepted, supported and embraced. This is a world which enables people with the condition to reach their full potential. Our Mission We...
Health Professionals
Last edited: 09-10-2024
Information for GPs What is TS and how is it treated? Tourette syndrome is a genetically determined neurological condition, the key features of which are tics, involuntary and uncontrollable sounds and...
Donate to Tourettes Action
Last edited: 29-08-2024
Without the support of people like you, it would not be possible for Tourettes Action (TA) to continue this work.We receive no government funding and rely entirely on voluntary contributions. How your...
January Challenge
Last edited: 29-08-2024
Studies show that doing something good for yourself and others can have a powerful, positive effect on the immune system, improve self-worth and self-esteem. The feel-good effect influences dopamine, serotonin,...
Behavioural therapy and Telemedicine
Last edited: 27-08-2024
Liz Murray*, Seonaid Anderson and Tara Murphy, Honorary Consultant Clinical Psychologist from Great Ormond Street Hospital NHS Trust (GOSH) Behavioural therapy Behavioural therapy can be useful...
Our Corporate Partners
Last edited: 08-08-2024
Tourettes Action & Corporates - A Partnership With Impact We believe there is a huge mutual benefit to these special corporate relationships: Our website receives an average of 9,305 new visitors...
Welcome to Tourettes Action
Last edited: 24-07-2024
Tourettes Action is a support and research charity working to improve the lives of people living with Tourette syndrome. Our services include online live-chat and email support, online and face-to-face...
TS Advisory Panel
Last edited: 19-02-2024
Meet our Advisory Panel members! Amanda Marples Amanda Marples is a Social Worker and writer from Rotherham in South Yorkshire. She has many years experience in community mental...
TS Passport
Last edited: 02-01-2024
Professionals worked closely with young people with TS to explore their psychosocial and educational experiences and to examine what factors influence tics and social interactions. The young people were...
TS Champions - Class of 2023
Last edited: 06-12-2023
The Tourettes Action TS Champion programme brings together young people to advocate for and talk about TS and Tic Disorders in their local community and before their peers at school and clubs. Each...
Get involved
Last edited: 26-11-2023
Donate to Tourettes Action Our work is funded completely by voluntary donations so your donation, be it £10 or £1,000, is essential in enabling us to continue our work. Donate online now. Fundraise...
TA events calendar
Last edited: 30-09-2023
Tourettes Action Funded Research 2017-2019
Last edited: 27-07-2023
Why Tourettes Action funded this round of research TS is perhaps the most publicly misunderstood of all neurological conditions and has considerable stigma attached. People with TS experience personal...
Research
Last edited: 27-07-2023
Tourettes Action is the leading UK based charity working with families and individuals living with TS, and is therefore well placed to promote research. We are committed to ensuring that research can make...
Tourettes Action Funded Research 2018
Last edited: 24-07-2023
1. Tackle your Tics: Feasibility of a brief, intensive group-based exposure therapy programme for children with Tourette Syndrome Annet Heijerman, Dutch Knowledge Centre for Child and Adolescent Psychiatry,...
Tourettes Action Funded Research 2019
Last edited: 24-07-2023
Developing novel brain imaging approaches to investigate the neural basis of premonitory urges in Tourette Syndrome Prof Penny Gowland, Professor of Physics, University of Nottingham, UK Award: £16,500 Study...
Tourettes Action Funded Research 2017
Last edited: 24-07-2023
1. The impact of executive functioning and time processing abilities on adaptive functioning in children with Tourette Syndrome Dr Tara Murphy, Consultant Paediatric Neuropsychologist, Great Ormond Street...
Other approaches to help manage TS
Last edited: 03-05-2023
The benefits of a healthy lifestyle Diet and exercise There are many different ways of generating health and well-being, the most obvious being a healthy, balanced diet and regular exercise. Although...
Medication for Tourette Syndrome
Last edited: 03-05-2023
Medication can reduce symptoms and improve quality of life of people with TS when needed. Unfortunately side effects of the treatments are not uncommon and their effectiveness varies from person to person,...
Behavioural Therapies and Tourette Syndrome
Last edited: 03-05-2023
Behavioural therapies and Tourette Syndrome Behavioural therapies can be useful for most people with tic disorders, although evidence suggests that it is effective for children as young as five years...
Managing Tourette Syndrome
Last edited: 03-05-2023
If you or a family member has Tourette Syndrome (TS), Tourettes Action is here for you. We consult with leading health experts and professionals in the education sector, and draw upon the latest research,...
Support with your research
Last edited: 06-04-2023
Recruiting participants We know that recruiting participants for research can sometimes be challenging. Tourettes Action can help your recruitment by sharing your research with our supporters. How...
Last edited: 06-04-2023
Important aspects of research include increasing our understanding of the prevalence of TS, the quality of life among people affected by TS and risk and protective factors associated with the impact of...
Spotlight on researchers
Last edited: 06-04-2023
Danni Phoenix-Kane is a PhD student at the University of Hertfordshire. Danni's doctoral research is exploring the diagnostic journey, lived experience, support and outcomes for adults presenting...
Events
Last edited: 05-04-2023
TICfest events - our popular weekend family residential events run annualy throughout the late spring/summer in different locations across the UK. TEENfest events - these events are for unaccompanied...
Ask the experts
Last edited: 05-04-2023
Tourettes Action asked the TS community to tell us what questions they would ask health professionals and researchers working in the field of Tourette Syndrome. We then put your questions to leading professionals...
Research Archive
Last edited: 03-04-2023
Pre 2019 Research Studies European Tourette Syndrome Research Survey A short questionnaire for patients and families with Tourette Syndrome, to inform researchers about what you would like TS research...
Deep Brain Stimulation (DBS) in Tourette Syndrome
Last edited: 15-02-2021
DBS in Tourette Syndrome Among the neurosurgical techniques, deep brain stimulation (DBS) with implantation of electrodes at selected targets undoubtedly offers advantages over traditional surgery, which...
Tourettes Action online
Last edited: 06-04-2020
Sign up now to follow us at: Facebook Twitter Youtube Instagram If you want news direct to your inbox don’t forget to sign up to the TA newsletter as well. Tourettes Action's social...
Latest news
Last edited: 19-02-2020
Resource library
Last edited: 12-12-2017
Click on one of the coloured boxes below to see information relevant to you, including research, treatment and about children with TS. From there, you will be able to decide what kind of materials you...
Sign up to the Tourettes Action e-newsletter
Last edited: 21-03-2017
The monthly Tourettes Action newsletter is emailed directly to your inbox and is packed with information about events, research projects, fundraising and stories about TS from the last month. We also occasionally...
Search Tourettes Action
Last edited: 30-07-2013
News
Study on the developmental characterisation of explosive outbursts in young people with Tourette syndrome
Date: 05-02-2025
A research project from University of Quebec in Montreal, Canada
Experiences of a functional tics diagnosis in adolescents
Date: 27-01-2025
A summary of a recent research study supported by TA
Are there benefits to using physiotherapeutic methods to decrease tic severity and pain levels for individuals with Tourette syndrome?
Date: 20-01-2025
A new research study from St Mary's University
Young people needed to help design a new research study
Date: 20-01-2025
From the University of Oxford
Webinar - OCD and how it links with TS
Date: 16-01-2025
with Dr Ed Palmer
Webinar - Evidence based treatments for Tourette syndrome
Date: 14-01-2025
With Professor Eileen Joyce
Webinar - Tourettic OCD: The differences from classic OCD and management
Date: 14-01-2025
with Dr Tara Murphy & Dr Claire Eccles
Webinar - Anxiety & TS
Date: 14-01-2025
with Dr Ed Palmer
The relationship between parental stress, stigma, resilience, and social support
Date: 09-01-2025
A new research study about Tourette syndrome
Research study investigating coping strategies, stress and sleep
Date: 08-01-2025
An assessment of their relationships and influences on tic severity in children with Tourette syndrome
New Research study from University of Bristol
Date: 07-01-2025
Optimising Therapy for Neurodivergent Adults: Reasonable Adjustments and Special interests and their interplay in therapy and quality of life
Tourette's January Challenge 2025
Date: 20-12-2024
Choose your wellbeing or fitness plan with us!
Research study seeking healthcare and education professionals supporting parents/children from ethnic minority groups with neurodevelopmental disorders
Date: 11-12-2024
New research study from the University of Nottingham
Participants needed to help inform the development of a feature film
Date: 10-12-2024
New research study from the University of Bristol
Functional Tic-Like Behaviours: Towards an Understanding of Young Peoples' Experiences
Date: 06-11-2024
New research study from the University of Hertfordshire
Self-stigma in Parents of Young People with Functional Neurological Disorders or Asthma
Date: 30-10-2024
New research study from the University of Oxford
Professional’s experiences of working with children and young people diagnosed with functional tics
Date: 30-10-2024
New research study from University College London and Great Ormond Street Hospital
Help improve access to healthcare for young people with neurodevelopmental disorders
Date: 15-10-2024
From the University of Nottingham
Using Online Support Communities for Tourette Syndrome and Tic Disorders: Online Survey of Users’ Experiences
Date: 07-10-2024
A summary of a recent research study supported by TA
The impact of interoception on tics, anxiety and quality of life in young people with Tourette syndrome/chronic tic disorders and functional tic like behaviours
Date: 25-09-2024
New research project
Lived Experience of TS Research Study
Date: 03-07-2024
Exploring the success of pharmacological vs art-based intervention
Exploring the urge to tic in TS
Date: 13-05-2024
A new research study from University of Nottingham
A Research Study into Mothers' accounts of mealtime and feeding challenges for children with Tourette syndrome or persistent tic disorders.
Date: 08-05-2024
A summary of a recent research study supported by TA.
Webinar - Update on the wearable wrist device
Date: 02-04-2024
Find out more about the wearable wrist device that delivers electrical pulses to reduce the amount and severity of tics experienced by individuals with TS.
TA does the 2024 London Landmarks Half Marathon
Date: 25-03-2024
Meet the team!
Guided Relaxation for tics
Date: 19-03-2024
In this article Liz Murray, a retired British Psychological Society (BPS) Chartered psychologist, explains how she was inspired to create a recorded guided relaxation for people with tics and Tourette...
Webinar - TS, Autism, Girls and Keeping It All Inside
Date: 18-03-2024
Autistic Girls Network is a small registered charity working to support, educate, and bring change.
Webinar - What is TS and what is FND?
Date: 18-03-2024
Join us for an evening presentation about FND and TS
Understanding the expression of everyday vocal and motor tics in adults
Date: 22-02-2024
An invitation to join a research workshop
Welsh Government’s Neurodivergence and Learning Disability Team Research
Date: 20-02-2024
Are you a parent or guardian of a child who has been assessed for neurodivergence?
How effectively are Neurodivergent Women supported in the workplace?
Date: 13-02-2024
A summary of a recent research study supported by TA
Experience of self-identification, diagnosis & support for adults with tic disorders in the UK
Date: 13-02-2024
A summary of a recent research study supported by TA
Could your business or employer help TA?
Date: 12-02-2024
We have BIG plans for 2024 and would love to make more connections with businesses to help us to achieve our goals.
Exploring the Nature of Anxiety in Children and Adolescents with and without Tic Disorder
Date: 05-02-2024
A summary of a recent research study supported by TA
An investigation into mothers’ experiences of their children’s functional tic-like behaviour and tic attacks
Date: 05-02-2024
A summary of a recent research study supported by TA
Neurodiversity in the Criminal Justice System
Date: 05-02-2024
A summary of a recent research study supported by TA
Understanding the applicability and impact of school behaviour policies on children, young people and adults with Tourette Syndrome or a tic disorder
Date: 01-02-2024
A summary of a recent research study supported by TA
Experiences of a functional tics diagnosis in adolescents
Date: 15-11-2023
Are you a young person who has received a diagnosis of functional tics? Please consider taking part in this study
New Research Project
Date: 30-10-2023
From the Department of Sociology at the University of Warwick
ImproviNg Tic Services in EnglaND (INTEND) study
Date: 25-10-2023
An exciting opportunity to join a panel to help shape research, from the University of Nottingham
Evaluating healthcare professionals experiences of assessing and treating tics in children and young people in the UK
Date: 11-10-2023
New research study for Professionals
Our CEO, Emma McNally, takes on the London Marathon to raise awareness of TS
Date: 08-03-2023
Read how Emma was inspired to go from couch to marathon in just 5 months!
Investigating the levels of social anxiety within the TS population
Date: 16-02-2023
A research study into the effects of self-focused attention on post-event processing in social anxiety.
Webinar - Therapy techniques for tic management
Date: 16-02-2023
With Consultant Paediatric Neuropsychologist & Clinical Psychologist Dr Tara Murphy
An investigation into parents’ experiences of adolescent sudden onset of tics and tic like attacks
Date: 02-02-2023
A 20-minute online survey
Tourettes Action Support And Advocacy Workshops
Date: 31-01-2023
Wrexham Workshop
Tourettes Action Support And Advocacy Workshops
Date: 31-01-2023
Cardiff Workshop
Outpatients Research Study
Date: 30-01-2023
James Lind Alliance Outpatient Service Delivery Priority Setting Partnership
Neurodiversity in the Criminal Justice System
Date: 26-01-2023
NHS funded research study
New Research Project
Date: 24-01-2023
Examining teacher knowledge, attitudes and the school environment when working with young people with TS in mainstream secondary schools.
Participants Needed!
Date: 23-01-2023
A study run by the University of Oxford
ESSTS Conference 2023
Date: 07-11-2022
Date announced for the next ESSTS event
Wearable wrist device clinical trial - recruitment completed
Date: 31-10-2022
Update on the ground breaking research
Team TA London Marathon Super Heroes 2022!
Date: 30-09-2022
Meet the team!
New research study from University of Nottingham
Date: 17-08-2022
Exploring time perception in Tourette Syndrome
An Exploration of Support for Children and Young People with Tourette Syndrome in Schools
Date: 01-08-2022
A lay summary of Thesis research conducted by Hannah Warnock as part of a Doctorate in Educational Psychology
Response to the Channel 4 documentary 'Britain's Tourettes Mystery'
Date: 20-07-2022
A statement from Tourettes Action
Call for interview participants
Date: 18-07-2022
Are you an adult with TS?
Spotlight on Shanique Shakespeare
Date: 06-07-2022
Exploring the nature of anxiety in children and adolescents with and without a Tic disorder
Date: 06-07-2022
New research study from the University of Hertfordshire
Neuro-divergent women and employment
Date: 05-07-2022
From researchers at the University of Sussex
New research study from the University of Nottingham
Date: 27-06-2022
Exploring the experiences of people who use online communities for Tourette syndrome and tics.
Webinar - FND and Tourettes
Date: 24-05-2022
Join us for an evening presentation about FND and TS
Spotlight on Danni Phoenix-Kane
Date: 17-05-2022
Experience of self-identification, diagnosis & support for adults with tic disorders
Date: 17-05-2022
A new study to understand the diagnostic journey experience of adults with tic disorders in the UK
Test a Tic Tracker App and help development
Date: 21-04-2022
Get involved and support research.
New website launch
Date: 06-04-2022
Find out more about the company developing a wrist worn device that helps reduce the urge to tic
Eating behaviours in adults with Tourette syndrome
Date: 28-03-2022
New research study from the University of Hertfordshire
Spotlight on Bobbie Smith
Date: 28-03-2022
TA does the 2022 London Landmarks Half Marathon
Date: 27-03-2022
Meet the team!
Webinar - Anger and TS
Date: 14-02-2022
With Dr Tara Murphy
An increase in people with tics and social media
Date: 06-01-2022
A statement from Tourettes Action Medical Director
Childhood Neurological Conditions Survey
Date: 21-12-2021
Help shape the future of research into childhood neurological conditions
An investigation into parents’ experiences of adolescent sudden onset of tics
Date: 17-12-2021
An important new research study
Leeds workshop NOW ONLINE!
Date: 07-12-2021
Event open for new bookings
Survey results for patients' perspectives on research and treatment
Date: 19-10-2021
Results from the patient voice survey in the updated European guidelines on treatment and management of TS
Parent Workshop - Leeds **SOLD OUT**
Date: 28-09-2021
A one-day workshop for parents and carers of those with Tourette Syndrome
Oliver Sacks - His Own Life
Date: 27-09-2021
A new film about the life and career of the renowned neurologist and author, Dr. Oliver Sacks
ORBIT (Online Remote Behavioural Intervention for Tics) Trial results published
Date: 09-09-2021
Webinar - Heart-focused practices for reducing stress and anxiety
Date: 08-09-2021
Join our next webinar, hosted by Yoga teacher, Craniosacral therapist, HeartMath® clinician and former TA employee Helen Eadie.
Young people aged 13-25 needed for research into how movement control develops in TS
Date: 12-08-2021
Four interactive games to choose from with the chance to win Amazon vouchers!
New research highlights safety requirements of Neurodiverse fans at live sporting events
Date: 10-08-2021
The key aim of this report was to recognise and highlight the access requirements of neurodiverse sports fans and how these related to questions about maintaining a safe environment within stadia and ...
Support Tourettes Action and save money with my favourite voucher codes this August
Date: 01-08-2021
We are thrilled to be included in the August Charity Poll on the site of My Favourite Voucher Codes for an opportunity to win 20% of their profits from the month of August. To give it our best shot, we...
Research study for teachers and parents
Date: 12-07-2021
Exploring the views of school staff and parents of children with TS with regards to the support schools provide.
Eating behaviours in adults with Tourette syndrome
Date: 29-06-2021
A research study from the University of Hertfordshire
The Voice - Mechanisms of Identity and Change
Date: 15-06-2021
Research project from Newcastle University, in collaboration with University College London.
Pain & Tics
Date: 15-06-2021
Research study from the University of Nottingham investigating experiences of pain and using pain management techniques in Tourette syndrome
Webinar - TS and sleep issues with The Sleep Charity
Date: 09-06-2021
Using Online Support Communities for Tourette Syndrome and Tic Disorders
Date: 25-05-2021
Researchers at the University of Nottingham publish results of an online survey exploring users’ experiences of using online support groups for tic disorders and Tourette syndrome
Oxford University survey for 11-16 year olds
Date: 18-05-2021
Survey to help produce resources for mental health and wellbeing
Driving with tic disorders: An international survey of lived experiences
Date: 09-03-2021
Read the findings of this recent global survey about the driving‐related experiences of adults with tic disorders.
Understanding the needs and experiences of neurodiverse sports fans
Date: 08-02-2021
The aim of the research is to understand the experiences of neurodivergent people when they attend sports events. This is in order to understand how services or facilities in stadia or sports grounds could...
The TIC-ToCS Project: Tourettes, Cognition, and Sleep
Date: 26-01-2021
Researchers in University College Dublin are inviting parents of children with Tourette Syndrome to complete an online survey about sleep, tics, and everyday behaviour.
Webinar - Understanding and supporting research into Tics and TS
Date: 25-01-2021
Ever wanted to find out more about how the research process works? Join us to hear from 2 researchers about their projects and what's involved.
Differences and similarities of ASD and Tourette Syndrome
Date: 18-01-2021
Autism spectrum disorder and Tourette Syndrome have many similarities, but there is a long way to go in the acceptance and understanding of both.
Research study explains the brain basis for feeling tired after tic suppression
Date: 18-01-2021
Find out how researchers at the University of Sussex used brain scanning to look at brain activity in people with tics.
Performance Control and Motor Functioning Study
Date: 05-11-2020
The Movement Development and Impact lab at the University of Surrey would like to invite you to take part in a new online study!
Neurodiversity at Work
Date: 28-10-2020
Research summary from the Institute of Leadership and Management
The social care needs of adults with Tourette Syndrome
Date: 12-10-2020
Read the latest study from the University of Kent into the everyday needs of adults with TS that are not being met.
My Prudential RideLondon
Date: 28-07-2020
Get on your bike – or scooter, skateboard, trike, balance bike, tandem, penny farthing, unicycle, roller skates – to help save the UK’s charities!
Dietary behaviours in adults with Tourette Syndrome
Date: 13-07-2020
Researchers at the University of Hertfordshire are asking adults, aged 18 and over, with Tourette Syndrome to take part in their study exploring dietary behaviours in adults
Exploring family mealtime experiences of high-school aged children with Tourette Syndrome
Date: 24-06-2020
Researchers at the University of Hertfordshire are looking for high-school-aged (11-16 years old) young people with Tourette Syndrome to participate in an online study.
Music and Tourettes
Date: 24-06-2020
A summary of a study into the role of music in the lives of those diagnosed with Tourette Syndrome by Lizz Lipscombe, Music Therapist: Bmus, MA, MA
Tackle your Tics
Date: 22-06-2020
A summary of a recent research project into how successful behavioural therapy for tics can be delivered in intensive group sessions over a short time frame.
Tourettes Action funded 'watch' research findings are published
Date: 08-06-2020
Returning to school - A guide for parents following Covid-19 restrictions
Date: 02-06-2020
A helpful guide to preparing children with TS for the return to school following Covid-19 restrictions
The role of pet dogs in helping children and young people with Tics
Date: 11-05-2020
Researchers at the University of Nottingham are asking for parents of children with tics, who have a pet dog, to complete an online survey.
Rage attacks and Tourette Syndrome
Date: 04-05-2020
A short summary of a recent research paper
Co-Space study: coping with the challenges of COVID-19
Date: 20-04-2020
Researchers at the University of Oxford have created an online survey for parents of school children aged 4-16
Thank you ORBIT team!
Date: 09-04-2020
Research findings about the role of the cerebellum in Tourette Syndrome
Date: 06-04-2020
Thank you to everyone who took part in the research study led by Hilmar Sigurdsson: "Alterations in cerebellar grey matter structure and covariance networks in young people with Tourette Syndrome"
Guidelines for Researchers
Date: 30-03-2020
How is the coronavirus impacting on TS research?
Date: 25-03-2020
Many thanks to the research team at ORBIT!
Date: 23-03-2020
Research leaflet
Date: 16-03-2020
Hans Eijsackers Award 2020
Date: 09-03-2020
This award is meant as an encouragement for researchers who not only focus on Tourette Syndrome, but actively incorporate the patients’ perspective into their research.
Minority and marginalized groups in forensic mental health
Date: 09-03-2020
When research raises uncomfortable issues for TS and chronic tic disorder
Date: 01-03-2020
PANDAS/PANS and Tourette Syndrome (Disorder)
Date: 25-02-2020
Clear and well researched information authored by the Tourette Association of America and PANDAS/ PANS Workgroup
National Diversity Awards 2020
Date: 24-02-2020
Tourettes Action have been nominated!
Newly appointed lay members for our Scientific Advisory Board (SAB)
Date: 19-02-2020
We are delighted to welcome three new SAB lay members, who will help guide our research funding decisions.
Tourettes Action does the London Landmarks Half Marathon!
Date: 29-01-2020
Meet our fantastic team of runners who will be fundraising for TA.
Research news: ORBIT Trial update
Date: 14-01-2020
A new paper called: 'Protocol for the Process Evaluation of the Online Remote Behavioural Intervention for Tics (ORBIT) randomized controlled trial for children and young people' has been published in...
New research project investigating the dietary and eating behaviours of adults with TS.
Date: 13-01-2020
Opportunities for early career researchers
Date: 13-01-2020
Emerging Minds UK - a research network that aims to reduce the prevalence of mental health problems experienced by children and young people - are offering funded cross sector placements for early career...
Tourettes Action Clinical consultation sessions
Date: 07-01-2020
Announcing new dates for 2020
AWARD ANNOUNCEMENT 2019-20
Date: 12-11-2019
Tourettes Action delighted to announce research grants awarded
Supplements and exclusion diets research study
Date: 12-11-2019
Investigating Motor and Cognitive Control in Developmental Motor Disorders.
Date: 07-11-2019
The Motor Development and Impact Lab (MoDI Lab) at the University of Surrey would like to invite you to volunteer for a study investigating motor and cognitive processes. The study investigates the processes...
Recruiting for research projects with the University of Nottingham
Date: 04-11-2019
Research project: An App for Wellbeing
Date: 04-11-2019
New Anxiety Resource
Date: 30-10-2019
We're excited to release the second video in our 'Tic Talk' series with Katie Skinner.
Summary of TICS Connect event
Date: 28-10-2019
Embracing complexity in diagnosis
Date: 22-10-2019
A new report from Embracing Complexity - a coalition of neurodevelopment and mental health charities - launched a report today looking at multi-diagnostic pathways for neurodevelopmental conditions.
Group Meeting at the University of Nottingham to discuss the development of an app for wellbeing
Date: 21-10-2019
Latest news from the ORBIT trial
Date: 03-10-2019
FUNDING ALERT!
Date: 30-09-2019
Spotlight on Research - Marta Topor
Date: 30-09-2019
Tourettes Action held their Tourettes Action research Network meeting on Friday 13th September 2019 in London.
Date: 26-09-2019
TICS connect
Date: 22-09-2019
Join researchers at the University of Southampton for a Tourette Syndrome and tic disorder information event.
New study investigating the effects of a new type of treatment.
Date: 12-09-2019
A sad loss for the TS community
Date: 11-09-2019
Tourettes Action Research Network (TARN) meeting 2019
Date: 01-09-2019
Tourettes Action Research Network (TARN) meeting 2019
Date: 01-08-2019
Research brings us closer
Date: 15-07-2019
Stigma Research
Date: 01-07-2019
A research team at the University of Kent is carrying out a new and exciting study about the stigma of Tourette Syndrome (TS).
Tourettes Action Research Network (TARN) meeting 2019
Date: 01-07-2019
June Fundraisers
Date: 26-06-2019
Find out what our fabulous fundraisers have been up to during TS awareness month.
Tourettes Is a Lonely Place: an Interpretative Phenomenological Analysis of the Personal Experience and Identity of Adults with Tourette Syndrome
Date: 24-06-2019
Dr Melina Malli, *Professor Rachel Forrester- Jones and Dr Paraskevi Triantafyllopoulou from the University of Kent received funding from the National Institute of Health Research, School for Social Care...
Research Awards Announcement 2019-20
Date: 24-06-2019
Tourettes Action delighted to announce research grants awarded
Recruitment for the ORBIT trial is now closed
Date: 18-06-2019
Tourettes Action Research Network (TARN) meeting 2019
Date: 17-06-2019
Spotlight on Research - Victoria Perkins and Bethan Davies
Date: 11-06-2019
Research into online communities
Date: 11-06-2019
Are you interested in contributing to understanding how online communities can be useful for people with Tourette Syndrome and tics, and their families too?
Tourettes Awareness Day 2019!
Date: 07-06-2019
ESSTS Hannover 2019 Report
Date: 30-05-2019
TA Research Manager, Seonaid Anderson, summarises the informative 3 days spent with professionals from all over the world, who gathered to discuss treatments and research about TS.
Tourettes Action research manager, Dr Seonaid Anderson presents research findings at European Society for the Study of Tourette Syndrome (ESSTS) 2019.
Date: 30-05-2019
Investigating the inner feelings of Tourettes during usual activities and during music activities like listening, performance and free improvisation.
Date: 29-05-2019
Lizz Lipscombe is looking for adult participants to take part in her Masters Research Project
Embracing Complexity Coalition
Date: 28-05-2019
Tourettes Action are proud to be partners with the Embracing Complexity Coalition
New study investigating the effects of a new type of treatment.
Date: 10-05-2019
Investigating the effects of music as a tic reducing therapy and how it impacts the self-esteem of individuals with Tourette Syndrome
Date: 21-03-2019
A summary of the overall research project and findings
Major genetic study confirms that many genes contribute to risk for Tourette Syndrome
Date: 05-03-2019
Collaborative investigation reveals genetic spectrum of tic disorders, with more risk variants leading to more severe symptoms
New research findings
Date: 28-01-2019
The role of sensory sensitivity in predicting food selectivity and food preferences in children with Tourette syndrome
BBC 5live Investigates: People with Tourettes struggling to get help
Date: 28-01-2019
Want to access therapy for tics?
Date: 24-01-2019
Do patients with Tourette Syndrome or chronic tic disorder have an increased risk of metabolic and cardiovascular disorders?
Date: 15-01-2019
Tourettes Action funded a research paper that has recently been published in prestigious journal JAMA neurology
How does music affect you?
Date: 31-12-2018
Exciting research opportunity for adults with TS investigating the effects of music as a tic-reducing therapy, and how it impacts the self-esteem of people living with TS.
In conversation with Association of Child and Adolescent Mental Health (ACAMH)
Date: 20-12-2018
Tourettes Action's research manager, Dr Seonaid Anderson; and Information manager, Helen Eadie were interviewed in a podcast by ACAMH.
New research suggests sensitivity to bodily sensations such as your heartbeat, links to premonitory sensations and tic severity
Date: 17-12-2018
Researchers at Brighton and Sussex Medical School reveal their research findings and what this could mean for future TS treatments.
Help a researcher include the voices of learners with TS in a new book aimed at education professionals
Date: 21-11-2018
Why tics can get worse in stressful social situations.
Date: 02-11-2018
A Tourettes Action supported research study shows part of the brain is hyperactive (the insula) when people with Tourette Syndrome see faces. This may go some way in explaining why tics can get worse in...
TICS Connect - Tourette Syndrome/Tic Disorders Information Event
Date: 29-10-2018
This public engagement event is for patients with a tic disorder or for people who think they or their family member may have a tic disorder / Tourette syndrome.
Infamous rubber hand illusion shows altered body perception in Tourette Syndrome
Date: 23-10-2018
Tourettes Action Research Awards 2018/19
Date: 22-10-2018
The new round of the research award scheme, call for 'expressions of interest' is currently open
World Mental Health Day 2018
Date: 10-10-2018
To coincide with World Mental Health Day, we have written a Tourette Syndrome topic guide for the Association of Child and Adolescent Mental Health (ACAMH)
STUCK (Support, Think, Understand Complex Kids) - a professionals meeting in Glasgow
Date: 05-10-2018
Tourettes Action research manager Dr Seonaid Anderson was invited to organise and present a STUCK (Support, Think, Understand Complex Kids) meeting in Glasgow in September.
One condition - many stories. Have yours heard.
Date: 04-10-2018
Josef Bates is a young, passionate filmmaker who was diagnosed with Tourette Syndrome as a teenager. His latest project is a short film/pilot 'Tic' which he hopes will be one of the most insightful portrayal...
Welcoming new lay members to Tourettes Action's Scientific Advisory Board
Date: 26-09-2018
Exciting Research News from TA-funded Project!
Date: 24-07-2018
Spotlight on Researchers - Sandra-Eve Bamigbade
Date: 23-07-2018
Sandra-Eve Bamigbade is a PhD student at the University of Hertfordshire interested in exploring the mealtime experiences of young people (12-16 years old) with TS and their parents.
European Tourette Syndrome Research Survey 2017-18
Date: 16-07-2018
A brief summary of the results from the first ever European patient survey
Celebrating our success!
Date: 03-07-2018
A little trumpet blowing to remind you of how together, we are making a better world for people with Tourette Syndrome
Mindfulness Practices for people with tics or Tourettes Syndrome (TS)
Date: 27-06-2018
Reduced specificity of autobiographical memories in young people with tic disorders Victoria Pile, Sally Robinson, Elystan Roberts, Marta Topor, Tammy Hedderly, Jennifer Y.F. Lau
Date: 21-05-2018
Research study shows a link between memory, depression and Chronic Tic disorders and Tourette Syndrome
Mechanisms of response initiation and response inhibition in Tourette syndrome
Date: 14-05-2018
University College London are recruiting adults with TS for a new research study
Awards Announcement 2017-18
Date: 24-04-2018
Tourettes Action delighted to announce research grants awarded
Behavioural Therapy is as effective as pharmacological therapy in the treatment of tic disorders in children and adolescents
Date: 09-04-2018
A Randomized Controlled Trial Comparing Behavioral, Educational, and Pharmacological Treatments in Youths With Chronic Tic Disorder or Tourette Syndrome
Guided Relaxation for tics
Date: 26-03-2018
In this article Liz Murray, a British Psychological Society (BPS) Chartered psychologist, explains how she was inspired to create a recorded guided relaxation for people with tics and Tourette Syndrome...
Summary of results from a study conducted by researchers at the University of Hertfordshire, exploring the eating and dietary behaviours in children with TS.
Date: 21-03-2018
European Society for the Study of Tourette Syndrome (ESSTS) 2018 conference
Date: 09-03-2018
The 11th annual ESSTS conference is taking place in Copenhagen from 13-15th June.
Webinar: TS and employment
Date: 06-03-2018
Tourettes Action are teaming up with Nancy Doyle, Occupational Psychologist who featured in BBC series 'Employable Me', to provide a forum for adults with TS, employers and all interested people to find...
Why does TS Research include certain age groups and not others?
Date: 28-02-2018
Meet the 2018 Tourettes Action London Marathon Team
Date: 27-02-2018
Find out what inspires our 6 super-star runners to take on the iconic 26.2 miles through the streets of our capital.
Clinical consultation sessions for professionals currently using Behavioural Therapy for tic management
Date: 12-02-2018
Getting to the nub of the issue with NIBS and Tourette Syndrome
Date: 31-01-2018
Research Manager at Tourettes Action, Dr Seonaid Anderson features in prestigious publication, The Psychologist, interviewing Tourette Syndrome research pioneer, Professor Stephen Jackson on the benefits...
Spotlight on research - Melina Malli
Date: 09-01-2018
The Social Care needs of Adults with Tourette Syndrome: An exploratory study
Date: 09-01-2018
A research team from the University of Kent is looking for adults with Tourette Syndrome to take part in a new and exciting study about the Social Care needs of adults with Tourette Syndrome.
Research News
Date: 11-12-2017
Some news into very early-stage research into Tourettes Syndrome from the USA in regards to drug treatment which may have future potential to be useful in a wide range of neurological diseases.
New meta-study finds results of brain scanning studies reflect diversity of people with Tourette Syndrome and their symptoms
Date: 30-10-2017
Relationships between mindfulness, self-compassion, parental stress, well-being and child behaviour in neurodisability
Date: 27-10-2017
Want to help create mindfulness interventions?
European Tourette Syndrome Research Survey 2017
Date: 26-10-2017
Tourettes Action is conducting the first ever European Tourette Syndrome Research Survey!
Genetic engineering technique to investigate Tourette's
Date: 19-10-2017
Tourettes Action research awards 2017/18
Date: 02-10-2017
Young peoples perspectives on the impact of their Tourette syndrome on education and wellbeing Research help needed
Date: 25-09-2017
How does exercise effect tics? New research opportunity at the University of Nottingham
Date: 19-09-2017
At the University of Nottingham we have already been able to show that exercise has a positive impact on tics and can significantly reduce them.
How can yawning help us to understand TS?
Date: 11-09-2017
Brain donation
Date: 22-07-2017
Occasionally at Tourettes Action we get asked about people with Tourette Syndrome who wish to donate their brain to research into the condition.
New Neurological Alliance report: Parity of esteem for people affected by neurological conditions
Date: 10-07-2017
European Society for the Study of Tourette Syndrome (ESSTS) conference 2017
Date: 21-06-2017
Eating and dietary behaviours in children with Tourette syndrome
Date: 21-06-2017
European Society for the Study of Tourette Syndrome (ESSTS) 2017 conference
Date: 14-06-2017
Today is the 10th European conference in Seville Spain. Here TS patient associations from across Europe come together in their annual meeting.
Neurological Alliance 2017 Manifesto: A call to action for neurology
Date: 25-05-2017
The Neurological Alliance - a collective voice for organisations working to make life better for people in England living with neurological conditions - has produced a Manifesto that sets out five calls...
Genetic basis of some cases of Tourette Syndrome discovered
Date: 10-05-2017
Researchers have discovered four genes that are associated with a higher risk of developing Tourette Syndrome.
Spring is in the air! And people start sneezing.
Date: 04-05-2017
At this time of year people often contact Tourettes Action asking whether there is any correlation between tics increasing and high pollen counts, or how antihistamine medication might affect them.
Tourettes Action delighted to announce research grants awarded
Date: 23-04-2017
Improving the lives of those living with TS
Computational model to seek an explanation for the neurological basis for Tourettes Syndrome.
Date: 05-04-2017
Researchers from Italy have used a computational model to seek an explanation for the neurological basis for Tourettes Syndrome. This has the potential to inform new therapies in the future.
New Neurological Alliance report: how has neurology patient experience changed since 2014?
Date: 14-03-2017
A survey of thousands of neurology patients reveals that services to diagnose, treat and provide on-going care are failing patients across the spectrum of neurological disorders.
Sound waves for movement disorders
Date: 16-02-2017
Could research into Parkinson’s shed some light on Tourettes Syndrome?
Brain Sciences journal special edition on TS
Date: 13-01-2017
Can you feel a tic signal?
Date: 05-01-2017
Tell us about Behavioural Therapy
Date: 04-01-2017
A second year undergraduate psychology student from Liverpool Hope University got in touch with Tourettes Action to ask some questions about behavioural therapy. Below are responses from Health Psychologist...
TA now reaching new heights!
Date: 16-12-2016
Association of Medical Research Charities has accepted TA as a member.
Tourette Syndrome Behavior Therapy training across the UK.
Date: 10-11-2016
Read about the benefits and watch this informative video which talks about Comprehensive Behavioral Intervention for Tics (CBIT).
Tourettes Action research grants - TA delighted to announce their grant award scheme
Date: 10-11-2016
Improving the lives of those living with TS
Do you feel emotionally overwhelmed in social situations?
Date: 02-11-2016
Dental splint trial to continue
Date: 22-10-2016
The real need for a high quality clinical trial
World Mental Health Day Monday 10th October
Date: 07-10-2016
Research finds a higher risk of suicide in people with TS in Sweden
Is skin sensitivity in Tourette syndrome just a feeling or reality?
Date: 07-10-2016
Researchers investigate why many individuals withTS report increased sensitivity to touch or find clothing tags irritable.
Are you a boy 11- 14 with TS/CTD? Do you find sleeping difficult?
Date: 04-10-2016
Like a £10 Amazon voucher by being in sleep study?
Language advantages with TS?
Date: 03-10-2016
Could people with TS 'think faster'?
Did you know that without research participants there would be no research into TS?
Date: 01-10-2016
Research needs YOU!
Atypical Sensory Behaviours Report
Date: 28-09-2016
A research study found the children with Tourette's and the children with Autism Spectrum Disorder (ASD) in their study showed a higher prevalence of atypical sensory behaviours and symptoms...
Maternal Smoking linked to a Risk for Tourette Syndrome
Date: 09-09-2016
Prenatal Maternal Smoking and Increased Risk for Tourette Syndrome and Chronic Tic Disorders
Tourette Syndrome Behavior Therapy training across the UK
Date: 08-09-2016
Tourettes Action recognises the critical shortage of trained behavioral therapists for TS
Clinical Research Training Fellowship in Tourette Syndrome
Date: 07-09-2016
The American Academy of Neurology and the Tourette Association of America are pleased to announce two, two-year fellowships to support clinical research training in Tourette syndrome. The award aims to...
Life On The Edge Of The Cliff
Date: 25-08-2016
A study into post school experiences of young people with Asperger's Syndrome, ADHD and Tourette Syndrome.
Results in - published paper. Beneficial effects of coloured overlays in children with TS
Date: 16-08-2016
Researchers based at University of Birmingham and the University of Essex found beneficial effects in reading when children with Tourette Syndrome used coloured overlays.
What research questions do you have about Tourette Syndrome?
Date: 08-08-2016
Just write down your research question!
LoTUS study (Learning and Breaking Habits in Tourette Syndrome)
Date: 05-08-2016
University of Nottingham research participants offered voucher of £30 & travel up to £60
Results: Brain imaging study about TS
Date: 21-07-2016
Ground-breaking link discovered between activity in the temporo-parietal junction in the brain and tic urges
Lifetime Achievement Award presented to Professor James Leckman for Research and Contributions to Patient Groups
Date: 21-06-2016
Professor Leckman has published more scientific papers on TS than anyone else in the world and Tourettes Action were proud to present this award.
The 2016 Annual Meeting of the European Society for the Study of Tourette Syndrome
Date: 08-06-2016
Researchers and academics pushing forward boundaries of what is known about TS
Professionals Training day a Huge Success!
Date: 13-05-2016
Tourettes Action training more clinicians in behavioural therapy
Drug and behavioural therapy are both effective for tics in people with Tourette syndrome
Date: 12-04-2016
Results: Behavioural therapies are as effective as medications
Sleep study participants wanted
Date: 21-01-2016
Research investigating sleep and learning in young people with Tourette Syndrome (TS) or Chronic Tic Disorders (CTD)
Research results find digital tools help with anxiety, stress and tics
Date: 27-10-2015
Research into digital tools to support the treatment & self-management of Tourette Syndrome
University of Nottingham Research on tic reduction techniques: Participants wanted
Date: 13-10-2015
Researchers at the University of Nottingham are running exciting research investigating the effects of non-invasive brain stimulation techniques on reducing tics
Research into how Mindfulness can help reduce tic frequency
Date: 12-10-2015
Free talking therapy offer to young people 11 to 13 years old.
University of Sussex Research into how the brain controls movement in TS
Date: 12-10-2015
STUDY NOW CLOSED
1st World Congress on Tourettes Syndrome and Tic Disorders
Date: 18-09-2015
A landmark international conference for Tourette Syndrome organisations and professionals
Dr Oliver Sacks - a life well lived
Date: 01-09-2015
Oliver Sacks died on Sunday 31st August 2015. Oliver Sacks was a Neurologist, a prolific writer and one of Tourettes Action's patrons.
Assistive digital technologies for living with Tourette Syndrome: Participants required for a research study
Date: 22-07-2015
Participants required for a research study: University of Nottingham
A study looking at the role mobile apps have in supporting the treatment of Tourette syndrome among young people.
Date: 14-07-2015
STUDY NOW CLOSED
Spotlight on Research: Dr Victoria Pile
Date: 29-06-2015
Dr Victoria Pile explains about her research into anxiety and low mood and how she hopes it will lead to more effective treatments for TS and CTDs
1st World Congress on TS and Tic Disorders
Date: 25-06-2015
Breaking research news
Volunteers aged 8-19 and their parents needed for research
Date: 11-06-2015
How does anxiety and low mood affect children and young people with Tourette syndrome
Result summary of survey conducted by Great Ormond Street Hospital, Kings College Hospital and Tourettes Action
Date: 02-06-2015
Survey shines light on how people affected by TS wish to see developments in particular areas of research
Spotlight on Research: Charlotte Rae
Date: 02-06-2015
Charlotte is a Research Fellow at the University of Sussex involved in brain scanning studies to better understand TS.
University of Sussex survey report
Date: 02-06-2015
Researchers at the University of Sussex discuss how your feedback has helped shape the next phase of their research.
Anekea's research results are in!
Date: 21-05-2015
One of our researchers, Anekea was undertaking resarch on the experiences of diagnosis for adults with TS.
Adults with TS in Sussex needed for research study
Date: 11-05-2015
Research helping to understand more about TS & possible treatments
Successful or helpful psychological interventions for tic disorders
Date: 08-05-2015
A new research paper by a researcher supported byTourettes Action published
Research news: Tourettes Action funding more research
Date: 01-05-2015
Researchers from Nottingham University studying alterations in brain structure & function that occur in TS
Parenting interventions in tic disorders
Date: 02-04-2015
The views of parents of children with tic disorders were sought
Awards for Research Contribution for professionals
Date: 01-04-2015
Tourette Syndrome and Tic Disorders Awards for research
Let's make our voice heard!
Date: 24-03-2015
An organization called Science is Vital is appealing for us to highlight the critically low levels of research funding in Britain they are asking Tourettes Action to support this action by asking its members...
Brain imaging study about TS
Date: 23-03-2015
The University of Birmingham and Tourettes Action carried out research studying people with TS’s thoughts and emotions using brain imaging. The results are now being analysed.
Perceptions of treatment for tics among young people and their parents
Date: 16-03-2015
This study explored perceptions of treatments for tics among young people with TS and their parents.
Free day for professionals at TSA conference June 2015
Date: 13-03-2015
Free day at TSA conference for research assistants/research students
So you want to be famous? You're in the right place.
Date: 06-03-2015
Tourettes Action are pleased to be able to work with both the press and the media, to ensure TS is portrayed positively.
Daily Experiences and Challenges of TS
Date: 06-03-2015
An Exploration of the Daily Experiences and Challenges Faced by Parents and Caregivers of Children with Tourette Syndrome
Deep brain stimulation in TS trial
Date: 26-02-2015
The aim of this study was to look at this process to examine whether Deep Brain Stimulation is likely to be a useful and well-tolerated operation for people with severe TS. The results will be published...
Potential funding for researchers
Date: 23-02-2015
Seed Corn Funding for potential Tourette Syndrome study in the field of paediatric neurology.
The Invisible Patients: New report reveals the alarming state of neurology services.
Date: 26-01-2015
Bringing together the findings of the Neurological Alliance’s inaugural quality of commissioning audit and neurological patient experience survey, the report identifies significant variation in...
BBC research opportunity
Date: 26-01-2015
Do you live with TS and are struggling to find employment?
Would you like to take part in research?
Date: 26-01-2015
TA features in SEN magazine, asking for people to take part in research.
Could YOU be one of our "FantasTIC Fundraisers?"
Date: 21-01-2015
Don't worry about broken new years' resolutions, why not try a different challenge?
TS & ADHD study of young people
Date: 19-01-2015
Researchers wanted to investigate why TS and ADHD are sometimes found together and how having symptoms of both conditions affects young people
Update: 1st World Congress on Tourette Syndrome & Tic Disorders
Date: 16-01-2015
Update: The 1st World Congress on Tourette Syndrome and Tic Disorders is designed for clinicians, researchers, post-doctoral fellows, medical residents and allied healthcare professionals with an interest...
Events
Webinar - Update from the developers of the wearable wrist device
Date: 12-04-2023
Professors Stephen and Georgina Jackson deliver an update on the research and clinical trial investigating the effects of median nerve stimulation on TS. Neupulse have been researching the pathophysiology...
Webinar - Anger and TS
Date: 09-03-2022
We are thrilled to offer this webinar with TS specialist Dr Tara Murphy, Consultant Paediatric Neuropsychologist and Clinical Psychologist at Great Ormond Street hospital. Dr Murphy has also been involved...
Webinar - TS and sleep issues with The Sleep Charity
Date: 14-07-2021
Vicki Dawson is CEO and Founder of The Sleep Charity and mum to Danny, who has Tourette Syndrome. The Sleep Charity use behavioural sleep intervention that has an evidence-base, with a research study...
WEBINAR - Understanding and supporting research into tics and TS
Date: 03-03-2021
We all know how important research is to the advancement of understanding and treatments for tics, so we are delighted to bring you this bespoke session to talk about research into tics and TS. Hosted...
Tourettes Action Research Network (TARN) meeting 2019
Date: 13-09-2019
This event provides a vital link between the researchers, academics and clinicians who see and treat patients with tics and Tourette Syndrome across the UK and internationally.
12th European Conference on Tourette Syndrome and Tic Disorders
Date: 15-05-2019
Calling all clinicians, post-doctoral researchers, residents, fellows and other professionals working in all areas associated with Tourette Syndrome, tics and related disorders. The 12th European Conference...
TICS Connect - TS and Tic Disorder Information Event
Date: 23-11-2018
TICS Connect Tourette Syndrome & Tic Disorders Information Event This event is free for everyone to attend and families are welcome This public engagement event is for patients with a tic...
Tourettes Action: Teacher Training Workshop
Date: 31-03-2014
Tourettes Action are pleased to announce a FREE one day workshop for teachers exploring Tourette Syndrome and best practice for supporting children with TS in the classroom. Guest speakers include,Chartered...
Resources
A Family's Guide to Tourette Syndrome
John Walkup (2012) Providing authoritative and up-to-date medical and scientific information about Tourette Syndrome, A Family's Guide to Tourette Syndrome speaks to patients, families, care providers,...
ACAMH: The Bridge, Tourette Syndrome edition
BBC Report about research into TS (28 Jan 2013)
Young people with Tourette Syndrome have been given new hope as a result of pioneering work by scientists at the University of Nottingham. Scientists involved in the study believe they can help patients...
C4 programme "The Undateables" catch up with Ruth.
You may remember, Ruth Ojadi apperared in series 3 of The Undateables. A C4 documentary that follows the lives of both disabled people and people living with long term conditions in their quest to find...
Causes of mortality in Tourette’s and Chronic Tic Disorders: A Swedish total population, 40-year longitudinal cohort study
Developing novel and effective non-drug therapies for Tourette syndrome based upon tic prediction and non-invasive brain stimulation (NiBS)
Developing novel brain imaging approaches to investigate the neural basis of premonitory urges in Tourette syndrome
Differences and similarities of ASD and Tourette Syndrome
GOSH - TS information pack
The experts at Great Ormond Street Hospital (GOSH) have put together an information pack for young people and families on Tourette Syndrome (TS). It includes information on anger management and managing...
Mothers' accounts of mealtime and feeding challenges for children with Tourette syndrome or persistent tic disorders
New insights into genetics of OCD, Tourette Syndrome
Psych central An international research group has provided the first direct evidence that both obsessive-compulsive disorder (OCD) and Tourette syndrome (TS) are highly heritable. Their report, published...
No "Casualty" as BBC1 script "TICked" all the right boxes.
Although the episode entitled "Sweet little lies," is less than an hour long, preparations for it began as early as 7 months before, back in July 2014. Casualty has its own dedicated research team based...
Proforma for non-funded research (word.doc)
Report into ImPAcT project: Improving the psychosocial experiences of adolescents with TS
This report summarises the findings from the research project ‘Improving the psychosocial experiences of adolescents with Tourette Syndrome’ (ImPAcT), focusing on the psychosocial issues impacting...
Research paper: Difficulties experienced by young people with Tourette syndrome in secondary school
Thirty-five young people with TS (11 to 18 years), their parents (n = 35) and key members of school staff (n = 54) took part in semi-structured interviews about TS-related...
Research report into coloured overlays and TS
Placing a coloured overlay on top of a page whilst reading has proven beneficial in reducing the symptoms of ‘visual stress’ and increased reading speed. Researchers found over 90 per...
Scientists find genetic architecture behind TS and OCD
Medical Daily Both obsessive-compulsive disorder (OCD) and Tourette syndrome (TS) are psychiatric disorders that often get in the way of people’s daily lives — whether it’s repetitive,...
Secondary Tourettes - Transition to Secondary School. SEN Magazine
While any transition for a young person with special needs is likely to raise concerns, the move from mainstream primary to secondary school can be one of the most challenging...
Swearing disease no joke for Dylan
By Nottingham Post - November 11, 2013 Many people think they know what it means to have Tourette's syndrome – indeed, we can all probably rattle off a couple of sick jokes about the disorder. It's...
The experience of stigma among adults with Tourette’s syndrome
The impact of executive functioning and time processing abilities on adaptive functioning in children with Tourette Syndrome
Tourette Syndrome
ed. Martino and Leckman (2013) Tourette Syndrome (TS) is finally recognized as a common neurodevelopmental disorder, and has gained increasingly high social awareness and scientific interest worldwide....
Tourette Syndrome in pregnancy
Some common concerns around being pregnant and having TS might be: whether medication is safe; adverse effects on the pregnancy and the mother's symptoms; the probability of the child having TS; and whether...
Tourette Syndrome, the 'extra' factor
By Kate Liptrot, the York Press. When told her eight-year-old son, Sam, had Tourette's Syndrome, Claire Findlay and her family struggled to cope with the diagnosis. “It’s difficult coming...
Tourette Syndrome: 10 Secrets to a Happier Life: Tourette Treatment Tips
“This book offers individuals with Tourette and their families many secrets that can lead them to a better life. There are new and exciting approaches to the development of treatments for individuals...
Tourettes Action Passport
Following on from the research undertaken by the University of Nottingham, commissioned by Tourettes Action, the TA passport has been produced. Download the attached file to read the press release.&nb...
University of Nottingham research study into online support groups
University of Sussex Tourette syndrome Research Newsletter
